Daily Living

posted on January 1, 2008 - 2:58pm
QUEST Vol. 15, No. 1
If you have a neuromuscular disease, is there anything more energy-draining than taking a shower or bath?
posted on October 1, 2009 - 3:13pm
QUEST Vol. 16, No. 4
Both my wife, Sharon, and I took the “in sickness and in health” wedding vow seriously and have been able to keep it very well, even though I’m in a wheelchair and she’s had some back problems. But when we both got a rough case of the flu at the same time and neither of us could help the other, all bets were off.

A 50-year-old with DMD escapes his nursing home via the Internet, thanks to a friend with SMA

posted on January 2, 2009 - 1:40pm
Dale Dulaney travels the World Wide Web via a mouth-controlled computer obtained by his friend Karen Wheeler, who also has a neuromuscular disease.

A former expert skier now schusses the slopes on a bi-ski

posted on March 19, 2009 - 9:00pm
Learning that Gregg Kuersteiner snow-skis black diamond (expert) slopes at high speed doesn’t seem unusual until you see the rig he skis on. Kuersteiner, 47, began skiing at age 2 every weekend of the season in his native upstate New York, under the tutelage of his father, a ski school instructor. He became an expert skier at an early age, and raced on the giant slalom team in high school.

Former Ms. Wheelchair Maryland will expand opportunities for people with disabilities

posted on May 7, 2009 - 2:02pm
Right out of high school, Denise Thomas began volunteering to help people with disabilities find employment. Now, nearly two decades later, she’s more involved with helping than ever, and she’s become a familiar face to Washington-area residents and a force for good in the nation's capital.

A student with CMT and teammates win awards for easy-access wheelchair backpack holder

posted on July 9, 2009 - 5:22pm
When a group of Wethersfield (Conn.) High School students was brainstorming ideas for a science project, they looked no further than team member Griffin Latulippe for an idea that vaulted them into the international spotlight.

Chester Kahapea, once the jubilant face of Hawaii’s statehood, now adjusts to life with ALS

posted on September 7, 2009 - 9:00pm
 

Steve Norris, a broadcast weatherman who has DMD, helps keep his community safe

posted on November 7, 2009 - 10:00pm
Long before a freak blizzard ripped into town and left more than a foot of snow in its wake, the citizens of Crossville, Tenn., and region had been warned to prepare for a freezing onslaught.
posted on September 1, 2003 - 3:08pm
The kitchen is the heart of the home. Whether preparing elaborate holiday meals, huddling over homework, reading the morning paper or chatting with friends, people usually make the kitchen the busiest room in the house. Kitchens for everyone are universal

Array of treatments means myasthenia gravis usually isn't so grave

posted on May 1, 2003 - 9:47am
Charles Ranly, who's had MG for eight years, oversees the plantings at his Texas country club. Photo by Charlie Bublik
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