Balancing parenthood and neuromuscular disease is not just possible — many dedicated moms and dads who live that reality every day say having kids is the best decision they've ever made
Matthew Martin and Amanda Hall have more than a few things in common. They’re roughly the same age — Martin is 28; Hall is 30. They both call the state of Texas home — Martin in Rowlett; Hall in Glenrose. Then there’s the fact that each lives with a neuromuscular disease — Martin was diagnosed with Duchenne muscular dystrophy (DMD) at the age of 8; Hall with congenital myopathy in her early 20s.
Facing a neuromuscular disease diagnosis can be devastating, overwhelming and confusing, but empowering yourself to take charge of your care or your child's care is more important than ever
Whether you are newly diagnosed or have been living with a neuromuscular disease for years, there is arguably one guiding principle that is most important when it comes to making decisions about your care and quality of life: You are in charge.
And with good reason.
Questions and answers about the FDA and its process for approving drugs
To people faced with life-threatening diseases, the U.S. Food and Drug Administration (FDA) can seem like an indifferent obstacle, keeping them from treatments that would otherwise be available. But the reality is much more layered and complex.
Five tips for dealing with the diagnosis of a late-onset muscle disease
Each form of muscular dystrophy is devastating in its own way. For some patients, symptoms may manifest at birth or at a young age. My situation was different.
Tips on how to find and use an accessible hotel pool lift this summer
ADA-compliant pool chair lifts provide individuals with disabilities a safe way to enter and exit public pools.
Many vacationers are seeing something different at hotels this summer: pool and spa lifts.
Meet clinical psychologist and disability advocate Danielle Sheypuk
Danielle Sheypuk, Ph.D., doesn’t just talk about the idea that people with disabilities can have robust and fulfilling romantic lives — she lives it, too.