Health Care

Power wheelchair users urged to speak up to preserve first-month purchase option

posted on July 10, 2009 - 9:32am
People who receive a power wheelchair through Medicare may lose the option to buy the chair immediately, under a proposed change to Medicare rules being considered by committees dealing with healthcare reform in the U.S. House of Representatives. The proposed rule change would eliminate the first-month purchase option for power wheelchairs provided by Medicare, requiring all Medicare...

Chester Kahapea, once the jubilant face of Hawaii’s statehood, now adjusts to life with ALS

posted on September 7, 2009 - 9:00pm

By identifying risk factors for autoimmune disease, researchers hope to predict and even prevent its onset

posted on November 1, 2003 - 12:55pm
Wendy Brown feels good, but she's worried it won't last. Two years ago, Brown felt herself losing strength. She had trouble lifting things and getting up from a seated position, and when she pushed herself, her muscles groaned in pain. Those problems came to a head in July...

A decision on approval for Lumizyme, a treatment for Pompe disease, is expected in June

posted on March 19, 2010 - 9:25am
Biotechnology company Genzyme, of Cambridge, Mass., expects the U.S. Food and Drug Administration (FDA) to rule by June 17, 2010, on Genzyme's application to market its laboratory-developed enzyme Lumizyme (alglucosidase alfa) in the United States. Lumizyme and its near-twin, Myozyme, replace the acid maltase enzyme deficient in people with Pompe disease (acid alpha-glucosidase deficiency or acid...
posted on March 31, 2010 - 1:54pm
QUEST Vol. 17, No. 2
“In my opinion, I’ve progressed a lot,” says 41-year-old Sandy Doak, who saw little progression of her central core disease until about five years ago, when she was in her mid-30s. “I didn’t have muscle spasms years ago, and I didn’t have these aches that I have. I’m a very active person, and I’ve been experiencing fatigue that I’ve never experienced.”

Eye care in neuromuscular disorders

posted on December 1, 2000 - 5:00pm
When people think about neuromuscular disorders, eye problems usually aren't the first thing that comes to mind. That makes sense, because most eye problems in neuromuscular disease are, thankfully, not too severe, treatable with therapy for the underlying disorder, or correctable with special lenses or surgery. But in some disorders, problems can persist, and they range from nuisances to...

Cutting the cord

posted on September 30, 2001 - 5:00pm
Tom Baker, 14, is the second child of Harold and JoAnn Baker of Dover, Ohio. When he was a small boy, the family noticed that he walked "funny," certainly not like their first child, Jessica, now 18, or their youngest, Lisa, 11. Still, doctors weren't terribly concerned until the Bakers took Tom for his kindergarten physical. "The doctor noticed that he exhibited the Gowers' sign," JoAnn...

Pain relief, relaxation and comfort can result when you get rubbed the right way

posted on December 1, 2000 - 1:03pm
Massage is the manipulation of soft tissue by stroking, kneading and pressure. It's been around for thousands of years, and it's good for babies, kids, adults of all ages, people with almost any medical condition or with none, and even for pets. Its general result is better blood circulation, overall relaxation, stress reduction and relief from muscle pain.

When their baby was born with overwhelming special needs, these parents became experts in nemaline myopathy

posted on January 31, 2000 - 5:00pm
Like many first-time parents, Doug and Tina Kurtz of Dayton, Ohio, immersed themselves in books on parenting in preparation for their new arrival. But when their son, Brent, was born with a rare muscle disorder, the Kurtzes found themselves abruptly plunged into a world where none of their parenting books could help.

Physicians and scientists will meet Jan. 21-22, 2011, in Columbus, Ohio, at an MDA-sponsored conference about cardiomyopathy in Duchenne muscular dystrophy

posted on January 18, 2011 - 4:06pm
Experts from around the world will gather Jan. 21-22, 2011, at an MDA-sponsored conference about the heart in Duchenne muscular dystrophy (DMD).