posted on November 1, 2006 - 1:40am
As a freelance writer, I’ve written on a variety of topics, such as marriage, stepping outside your comfort zone, laughter as a prescription for life, and fatigue. Ironically, these themes have all come together in a new chapter of my life: fatherhood.
Mattie Stepanek’s mother offers an inside look at the poet and former MDA National Goodwill Ambassador
posted on October 30, 2009 - 9:00pm
MDA National Vice President Jeni Stepanek will be a guest on the November 2 broadcast of ABC's "Good Morning America" to promote the release of Messenger: The Legacy of Mattie J. T. Stepanek and Heartsongs, an inside look at the life of her famous son, who served as MDA’s National Goodwill Ambassador from 2002-2004.
posted on December 31, 2009 - 1:01am
Featured in this issue: Jeni Stepanek's "Messenger: The Legacy of Mattie J.T. Stepanek and Heartsongs" ** Fiction and nonfiction by authors: Christoph Keller, Patricia N. Rachal, Robert E. Paulson, Michael P. Murphy, Paul MacLean and R.J. Huddy.
Men with Duchenne MD find independence within their reach
posted on October 1, 2002 - 11:33am
Recently, the dad of a young boy with Duchenne muscular dystrophy (DMD) was trying to explain to a child psychologist about certain educational choices his son needed to make in order to be well prepared for adulthood.
Actor Max Adler is 'making a muscle for MDA' in honor of his late mother and grandmother with FSHD
posted on July 1, 2011 - 4:20pm
The hit TV show “Glee” launched actor Max Adler into the national spotlight as football player and bully Dave Karofsky. But it’s his late mother’s fight with facioscapulohumeral muscular dystrophy that launched him toward MDA’s Muscle Team.
Can love, courage and modern medical technology prevent muscular dystrophy from being passed on to the next generation?
posted on March 31, 2011 - 12:01pm
It was the worst Monday morning of our lives — and Mondays are universally bad.
My wife, Monique, and I woke up to a snow lockdown in London. The snow had started gently enough in the evening, but now on this January morning it was a white strait jacket. We could hardly move, but we desperately needed to get to Nottingham at all costs. Our potential future children — two fertilized and rapidly...
posted on July 1, 2007 - 4:56pm
Our son is wonderful,” says K.M., a 42-year-old San Francisco area events manager and the mother of a 7-year-old boy with Duchenne muscular dystrophy. “I couldn’t ask for anything more. He’s everything I ever wanted. Of course I wouldn’t want this disease, but he’s just such a great, sweet kid, and it’s been our hope and dream to give him brothers or sisters.
