Man with nemaline myopathy takes his chances on Who Wants To Be A Millionaire
posted on October 10, 2009 - 10:48am
Sargon de Jesus has always been a trivia buff and a fan of game shows that test trivia smarts. So when he earned an appearance on the popular TV game show Who Wants To Be A Millionaire, de Jesus was "totally psyched" and ready to take his shot at some big money.
Busy man
As someone who has cultivated a vast array of interests and talents, de Jesus possesses a broad and varied base of experience...
Power wheelchair users urged to speak up to preserve first-month purchase option
posted on July 10, 2009 - 9:32am
People who receive a power wheelchair through Medicare may lose the option to buy the chair immediately, under a proposed change to Medicare rules being considered by committees dealing with healthcare reform in the U.S. House of Representatives.
The proposed rule change would eliminate the first-month purchase option for power wheelchairs provided by Medicare, requiring all Medicare...
Tune in Jan. 28 when the show “Live for the Moment,” hosted by Jeff Probst, makes dreams come true for Roger Childs, who has ALS.
posted on January 22, 2010 - 6:03pm
On Jan. 28, a CBS special will help raise awareness of ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease) by describing how a Colorado man is making the most of his life while battling the deadly disease.
Titled “Ordinary People, Extraordinary Challenges,” the special is part of CBS’ new “Live for the Moment” reality series co-produced by Jeff Probst, host of the network’s popular “...
Victor Pineda travels the world promoting 'inclusive societies' for young people with disabilities (video)
posted on July 13, 2010 - 5:36pm
Life has been a whirlwind of activity for Victor Pineda lately. The 31-year-old bachelor got married the first week in July. He earns his Ph.D. in government planning around the first of August.
But these momentous events are almost insignificant compared to the rest of his typical schedule. In 2005 Pineda created the Victor Pineda Foundation (VPF) and today it commands most of his...
Sidelined by bone cancer, limb-girdle MD and depression, Steve Williams found a way to get back out on the open road
posted on July 20, 2010 - 3:55pm
The “passenger” in Steve Williams’ motorcycle sidecar doesn’t say much, but if it could talk, it probably would have plenty of stories to tell.
A free iPhone application helps shoppers find accessible routes, food, bathrooms in malls
posted on January 28, 2010 - 9:17am
A new, no-cost iPhone application is now available to help shoppers locate facilities like elevators and accessible restrooms in the country’s larger malls.
Called FastMall, the application (app) from Web developer MindSmack may prove especially helpful to wheelchair users and others who want to chart accessible pathways among a maze of retail outlets. For outside the mall, FastMall has a helpful...
Tom Mecke of San Antonio, who has Duchenne muscular dystrophy, has spent five decades — and counting — following his dreams
posted on May 12, 2010 - 3:35pm
January 17 was a particularly special day for Tom Mecke. It was his 50th birthday, and he had beaten a pretty long set of odds to get there.
Mecke, a San Antonio, Texas, resident all his life, has Duchenne muscular dystrophy (DMD). He and his parents got the news that he has the disease when he was 6 years old. They also were told he’d probably die before he turned 20.
