Advocates

New Mattie Book
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Mattie Stepanek’s mother offers an inside look at the poet and former MDA National Goodwill Ambassador

posted on October 30, 2009 - 9:00pm
 MDA National Vice President Jeni Stepanek will be a guest on the November 2 broadcast of ABC's "Good Morning America" to promote the release of Messenger: The Legacy of Mattie J. T. Stepanek and Heartsongs, an inside look at the life of her famous son, who served as MDA’s National Goodwill Ambassador from 2002-2004.
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Disability Activist with SMA is a Globe Trotter
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Victor Pineda travels the world promoting 'inclusive societies' for young people with disabilities (video)

posted on July 13, 2010 - 5:36pm
Life has been a whirlwind of activity for Victor Pineda lately.  The 31-year-old bachelor got married the first week in July.  He earns his Ph.D. in government planning around the first of August. But these momentous events are almost insignificant compared to the rest of his typical schedule. In 2005 Pineda created the Victor Pineda Foundation (VPF) and today it commands most of his...
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Comic with BMD Builds Accessibility One Doorway at a Time
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Jonah Bascle, who has Becker muscular dystrophy, uses jokes, ramps and street protests to raise disability awareness in New Orleans

posted on October 8, 2010 - 3:55pm
Jonah Bascle (rhymes with “rascal”) unleashes his zany brand of stand-up comedy on New Orleans nightclub and restaurant patrons four or five times a week. As an unusual consequence of these gigs, more and more of the historical city’s old buildings are becoming accessible to people in wheelchairs. As a guy who uses a wheelchair himself due to Becker muscular dystrophy, Bascle, 24, knows first...
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