Periodic Paralysis Conference Connects Experts, Families

The conference, Nov. 4-6 in Orlando, Fla., will update families on research and address daily life issues

Article Highlights:
  • The Periodic Paralysis Association's biennial conference will take place at the Rosen Centre in Orlando, Fla, Nov. 4-6, 2011.
  • Several current and former MDA research grantees will give presentations.
  • Workshops will emphasize daily life with periodic paralysis, genetic testing and research
by Margaret Wahl on August 5, 2011 - 3:33pm

The 2011 Periodic Paralysis Association Conference will be held Nov. 4-6 in Orlando, Fla., and is geared toward people with periodic paralysis (PP), their families, physicians and friends.

This is not an MDA meeting, but several current and former MDA research grantees will be speaking. Among them are:

  • Frank Lehmann-Horn from the University of Ulm (Germany);
  • Robert Griggs from the University of Rochester (N.Y.); and
  • Kathryn Wagner from the Kennedy Krieger Institute in Baltimore.

In addition to the featured presenters, the conference will include workshops on:

  • how to communicate with the medical community while advocating for your health care;
  • managing diet, medications and symptom triggers associated with periodic paralysis;
  • finding emotional support;
  • genetic testing for periodic paralysis; and
  • how a research study works.

To attend the Orlando PPA conference

The conference will take place at the Rosen Centre Hotel in Orlando, Fla., where a special rate for this meeting is $109 per night. For reservations, see the website or call (888) 800-2174.

The meeting registration fee is $50 per person until Sept. 30, 2011, after which it is $75. Children younger than 10 are free.

To register, go to Fees & Registration; or contact Linda Feld, PPA vice president, in central Florida, at (407) 339-9499.

The Periodic Paralysis Association says it will try to help those who would like to attend but for whom the expense is prohibitive.

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