To celebrate our 20th anniversary, MDA’s Quest magazine is highlighting “oldies but goodies” that cover a number of topics
posted on April 1, 2013 - 9:09am
The Quest archives are jam-packed with informative articles about living with neuromuscular disease. In order to share (or re-share) some with you, Quest will be highlighting 20 back-issue articles in each 2013 issue.
posted on April 1, 2013 - 9:07am
Camp's a-coming!
Take a peek. It’s just around the corner … “the best week of the year!” Also known as MDA summer camp, children ages 6 to 17 who are registered with MDA can attend camp at no cost to their families. Nearly 80 accessible camp sessions across the country are supported by MDA, offering a wide variety of activities, which may include fishing, archery, horseback riding, adapted sports...
posted on April 1, 2013 - 9:05am
Rock 'n' roll
posted on April 1, 2013 - 9:03am
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Clinical trials expert Merit Cudkowicz discusses why it's so hard to find therapies for ALS
posted on April 1, 2013 - 9:03am
Put together the words amyotrophic lateral sclerosis (ALS) and the phrase clinical trials expert, and one name that is sure to follow is Merit Cudkowicz.
Cudkowicz is chief of neurology and director of the Neurology Clinical Trials Unit and the ALS Center at Massachusetts General Hospital (MGH) in Boston. The longtime MDA grantee also directs the MDA/ALS Center at MGH (one of five sites in MDA’s...
posted on April 1, 2013 - 9:01am
Spring is a time of change and new growth, and MDA is experiencing a lot of both these days. No matter where you look, we’re innovating, extending our reach, leveraging our resources, supporting new initiatives and building partnerships.
Moving Toward 'Next-Generation' Gene Therapy - 05/23/13
FA: RG2833 is Well-Tolerated and Increases Frataxin Gene Activity - 05/17/13
Newborn Screening Recommended for Pompe Disease - 05/17/13
DMD, BMD: Phase 3 Trial Opens for Stop Codon Read-Through Drug - 05/08/13
SMA: Trial Tests Antisense Therapy in Infants - 05/07/13
MTM Phone-Based 'Event' Study Now Open - 05/03/13
