New Guideline for FSHD Diagnosis and Care

New Guideline for FSHD Diagnosis and Care

The American Academy of Neurology and American Association of Neuromuscular & Electrodiagnostic Medicine have published new recommendations for doctors who see patients with facioscapulohumeral muscular dystrophy

It's Myasthenia Gravis Awareness Month 2015

It's Myasthenia Gravis Awareness Month 2015

A look at symptoms, diagnosis, treatments and current MDA-supported research into this complex autoimmune disorder

New Guideline for CMD Diagnosis and Care

New Guideline for CMD Diagnosis and Care

A committee convened by the American Academy of Neurology has published new recommendations for doctors who see children with congenital muscular dystrophy

CMD: Phase 1 Omigapil Trial Remains Open

CMD: Phase 1 Omigapil Trial Remains Open

Santhera Pharmaceuticals is testing anti-cell death compound omigapil in children and teens with merosin-deficient and Ullrich congenital muscular dystrophies

FDA OKs Testing of OPMD Drug in US

FDA OKs Testing of OPMD Drug in US

Israel-based BioBlast Pharma says a California site will be added soon to locations already testing Cabaletta in oculopharyngeal muscular dystrophy in Israel and Canada

SMA: ISIS-SMNRx To Be Tested in Presymptomatic Infants

SMA: ISIS-SMNRx To Be Tested in Presymptomatic Infants

The experimental antisense drug will be tested in infants with a genetic spinal muscular atrophy diagnosis who are to date without symptoms

FEATURED IN QUEST MAGAZINE

Measuring progress in the fight against neuromuscular disease

posted on October 8, 2015 - 9:33am
Fill the Boot

Finding a new job for the summer in a new city and learning the value of embracing the unexpected

posted on October 8, 2015 - 9:31am
I decided to go to business school because I wanted to propel myself into a new career in a new industry. Leaving the tech world for the life sciences field would be no easy transition, and I realized a master’s degree would be my best way to accomplish this goal.

A first-time MDA camper reminisces about his unforgettable experience

posted on October 8, 2015 - 9:29am
The excitement that surrounds MDA Summer Camp is evident from the energy and smiling faces of the campers. That’s perhaps especially true of first-time campers.

One woman with spinal muscular atrophy uses the power of invisibility to her advantage

posted on October 8, 2015 - 9:27am
I was born with a superpower, only it took most of my life to realize that I had it. I had suspicions when I was younger, but never fully understood the breadth and depth of this superpower until recently. I have the power to be invisible. I can be in a restaurant and the wait staff doesn’t see me. I can be going down the street where people are aggressively distributing pamphlets, and I...

News and updates from the MDA community

posted on October 8, 2015 - 9:25am
MDA Muscle Walk: Why I Walk

Research and clinical trial updates

posted on October 8, 2015 - 9:23am
Towards Treatments and Cures New grants pave the way to progress