New Guideline for FSHD Diagnosis and Care

New Guideline for FSHD Diagnosis and Care

The American Academy of Neurology and American Association of Neuromuscular & Electrodiagnostic Medicine have published new recommendations for doctors who see patients with facioscapulohumeral muscular dystrophy

It's Myasthenia Gravis Awareness Month 2015

It's Myasthenia Gravis Awareness Month 2015

A look at symptoms, diagnosis, treatments and current MDA-supported research into this complex autoimmune disorder

New Guideline for CMD Diagnosis and Care

New Guideline for CMD Diagnosis and Care

A committee convened by the American Academy of Neurology has published new recommendations for doctors who see children with congenital muscular dystrophy

CMD: Phase 1 Omigapil Trial Remains Open

CMD: Phase 1 Omigapil Trial Remains Open

Santhera Pharmaceuticals is testing anti-cell death compound omigapil in children and teens with merosin-deficient and Ullrich congenital muscular dystrophies

FDA OKs Testing of OPMD Drug in US

FDA OKs Testing of OPMD Drug in US

Israel-based BioBlast Pharma says a California site will be added soon to locations already testing Cabaletta in oculopharyngeal muscular dystrophy in Israel and Canada

SMA: ISIS-SMNRx To Be Tested in Presymptomatic Infants

SMA: ISIS-SMNRx To Be Tested in Presymptomatic Infants

The experimental antisense drug will be tested in infants with a genetic spinal muscular atrophy diagnosis who are to date without symptoms

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Meet Ayden Watts and his team of 'wall crawlers'

posted on July 14, 2015 - 3:11pm
Six-year-old Ayden Watts, who was diagnosed with Becker muscular dystrophy at age 2, loves Spider-Man.

How unique advances are helping popularize the trend of accessible video gaming

posted on July 14, 2015 - 3:09pm
The World Health Organization estimates that at least 10 percent (roughly 700 million) of the world’s population is affected by a disability, while the Entertainment Software Association reports 500 million people play video games for at least an hour a day. The extent to which these two groups overlap on a global scale is unknown — but it’s likely more than you think.

In this college-admissions essay, Harvard-bound Caroline Zheng shares how MDA summer camp gave her confidence

posted on July 14, 2015 - 3:07pm
"Scientists have been trying to find it for hundreds of years, pouring tons of money into research, and to this day they don't have a theory. The elements found in a human being is all junk that you can buy in any market with a child's allowance. Humans are pretty cheaply made," begins a passage from Hiromu Arakawa's Fullmetal Alchemist series. I learned this fact the hard way in...

News and updates from the MDA community

posted on July 14, 2015 - 3:05pm
Uniting Today for A Better Tomorrow: Building on the telethon’s rich history to achieve new ways to reach and connect families

Research and clinical trial updates

posted on July 14, 2015 - 3:03pm
Powerful Research MDA welcomes a neurological disease expert to the family

Feedback from Quest readers and the MDA community

posted on July 14, 2015 - 3:01pm
Future focused Editor’s note: MDA’s announcement that it will no longer host an annual telethon in favor of channeling resources into other ways to raise funds and awareness for its families year-round has sparked many comments on Facebook. For more on this topic, see Uniting Today for a Better Tomorrow in Access MDA.