weight loss

Expert tips for shedding or adding weight to manage one's disease

posted on January 5, 2015 - 9:15am
Any health professional will tell you that good nutrition is a key to living well with and managing a neuromuscular disease. But what if the disease itself makes that goal hard to reach? That’s the all-too-common challenge many people with neuromuscular disorders face.  
posted on January 1, 2011 - 4:50pm
QUEST Vol. 18, No. 1
Note: Always consult your doctor before undertaking a weight loss plan. I have always had problems with my weight. From the time I was 5, I’ve had round, chubby (some would say pinch-able) cheeks — and my cheeks weren’t my only round part. When I was in high school I started really battling with weight. I decided to diet my senior year and lost 12 pounds. I thought that was the toughest dieting I...

Move it, stretch it, flex it, lift it, hit the water — just say YES to exercise

posted on May 1, 2007 - 1:52pm
QUEST Vol. 14, No. 3
Why should having a neuromuscular disease exclude you from exercise and all its benefits? Perhaps you’re not aware of what forms of exercise you can do, given your abilities. Maybe you have questions and doubts about the intimidating prospects of starting an exercise routine. Or perhaps you’re in the “What good will it do me?” frame of mind.

Extra pounds carry more weight in neuromuscular disease

posted on July 1, 2004 - 3:27pm
If you’re reading this article, you’ve probably already tried to lose weight. You already know the basic, simple formula for success (burn more calories than you eat), and you know just how devilishly hard it is to follow. People with neuromuscular diseases are up against a double (or triple or quadruple) whammy when it comes to losing weight. In addition to the usual dieting challenges — yummy...

Dispatches from the battle of the bulge

posted on July 1, 2004 - 3:01pm
In her daily life with mitochondrial myopathy, Deanna Briegge of Perry, Okla., often turns to this bit of wisdom from financial guru Bob Proctor: “You can do anything if you put your focus on how to do it, rather than on why you can’t.” Although Briegge, 59, isn’t overweight, she sees her scale slowly creeping upward each year and tries to focus on ways to maintain health and fitness — watching...
posted on July 1, 2004 - 3:00pm
If they’re undertaken with care and supervision, exercises that strengthen and build muscle, and exercises that burn calories, can help you lose weight — or at least enjoy a little more food without gaining. Limited research suggests that most people with slowly progressive muscle diseases can do some exercise and gain muscle strength. Careful exercise even may protect muscles against damage from...
posted on July 1, 2004 - 3:00pm
When Greg Yudkowsky, 15, hit 185 pounds, his mother, Michelle, knew it was time to do something. Although the 5-foot-6-inch teen, who has Duchenne muscular dystrophy, still was walking with assistance and full leg braces, the extra weight made moving more difficult, and the family struggled to lift him. His physical therapist said that losing even 10 pounds would help.
posted on July 1, 2004 - 3:00pm
Now that Carmen "Deedie" Deal’s stomach is about the size of an egg, it’s fitting that she eats like a bird. The 48-year-old woman, who has Charcot-Marie-Tooth disease (CMT), underwent gastric bypass surgery in October 2003, and in six months dropped more than 75 pounds from her 5-foot-6-inch frame. Deal, of Myrtle Beach, S.C., ate her way up to 330 pounds "feeding the stress" of family and...