Exploring the unique dynamic — its blessings and occasional hurdles — of one sibling caring for another with neuromuscular disease

posted on October 8, 2015 - 9:51am
In a small Detroit apartment, Sam Barash, 32, lives with and cares for his 20-year-old, soon-to-be 21, sister, Angela Barash, who is living with myotonic muscular dystrophy and myasthenia gravis.

The final story in the series covering the 2014 MDA Clinical Conference addresses helping the brothers and sisters of children with disabilities

posted on April 11, 2014 - 1:57pm
"Anything we can say about being a parent of a person with special needs we can pretty much say for being a sibling of a person with special needs," said Don Meyer, director of the Sibling Support Project based in Seattle. Meyer talked about siblings of people with disabilities at the 2014 MDA Clinical Conference in Chicago during an afternoon session titled "Specialized Care," held March 18.

Michael Wogan, who had congenital muscular dystrophy and was killed in a Reno air show accident, enjoyed travel, airplanes and adventure

posted on September 21, 2011 - 9:00am
Michael Wogan had been looking forward to the trip to the National Championship Air Races in Reno, Nev. According to his younger brother James, “Michael liked to get out and travel, and he was so excited about getting on a plane.” Michael’s older brother Billy, 26 — who, like Michael, 22, and James, 19, has congenital muscular dystrophy (CMD) — was supposed to attend the show with their dad. When...
posted on April 1, 2009 - 4:13pm
QUEST Vol. 16, No. 2
Letters to Quest: Camp is so important ** Moms on Wheels ** All camps not the same ** No guarantees (life expectancy) ** FMLA and sibling caregivers ** Pay for family caregivers.
posted on July 1, 2008 - 1:52pm
QUEST Vol. 15, No. 4
NOTE: Books mentioned in Quest usually can be ordered through local bookstores or online. Reviewed books are not available through MDA.
posted on September 1, 2005 - 3:03pm
QUEST Vol. 12, No. 5
In this article, the latest news on clinical trials in: weight and nutrition * Heart changes in FSH dystrophy * heart problems in Duchenne MD * siblings' similarities in MMD * myotonia congenita * late-onset Pompe's disease * parents' input

Siblings of children with disabilities have a unique growing-up experience

posted on January 1, 2004 - 10:00pm
I discovered that my sons, ages 10 and 13, were drinking a soda apiece as an after-school snack. This is gonna stop, I announced firmly. But instead it suddenly shot way beyond soda pop. "Does Sarah still get a soda then?" the boys demanded. Their older sister, 20, has cerebral palsy and mental retardation. She enjoys a soda after school each day the way some people savor a cocktail after work....
posted on January 1, 2004 - 10:18am