myotonic dystrophy

MDA hosted ‘viewing parties’ around the country to watch a live session from the International Myotonic Dystrophy Consortium

posted on November 29, 2011 - 6:00am
As part of the upcoming International Myotonic Dystrophy Consortium (IDMC-8) in Clearwater, Fla., a session will be held Saturday, Dec. 3, 2011, to provide a research update for individuals and families affected by myotonic muscular dystrophy (MMD).
posted on June 30, 2010 - 5:24pm
QUEST Vol. 17, No. 3
Liz Trumpy, 39Levittown, N.Y.type 1 myotonic dystrophy Liz Trumpy was an active, apparently healthy New York City police captain who worked out with weights, ran a marathon and participated in mini-triathlons. Married to another police officer, she went to the gym regularly throughout her pregnancy, even on the day before she gave birth. “If Kelly had been born without health problems, I...
posted on February 1, 2002 - 3:39pm
Wendy Salo's doctors told her she was suffering from stress — or perhaps chronic fatigue syndrome. But Salo knew there was something else going on. At the time, she was in her late 30s. Admittedly, she had reason to be tired and stressed. She had a full-time job developing software for banks, and she had a husband and two teen-age sons. But, to her way of thinking, those factors couldn't account...
posted on February 1, 2002 - 12:42pm
Sheila Smith of Brookhaven, Miss., can't get over the feeling that myotonic dystrophy is an unwelcome, and unexpected, intruder in her family. It started in November 1998, when her husband, Michael, then 33, had a car accident. "We feel that he fell asleep at the wheel," Sheila says.