New survey shows average of 2.5 years elapse between symptom onset and diagnosis of DMD
A study that analyzed medical records from four U.S. states has found that the average time between symptom onset and diagnosis of Duchenne muscular dystrophy (DMD) is 2.5 years, an interval that hasn't changed in two decades.
This delay in identification postpones treatment that can slow the progression of the disease and results in lost opportunities for genetic counseling of parents.
As the 110th Congress drew to a close this fall, a tremendous victory emerged for people with muscular dystrophy: the reauthorization of the MD-CARE Act.
The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008 updates the 2001 law that coordinates and focuses federal research on different forms of muscular dystrophy, collects...
In this article, the latest news on clinical trials in: weight and nutrition * Heart changes in FSH dystrophy * heart problems in Duchenne MD * siblings' similarities in MMD * myotonia congenita * late-onset Pompe's disease * parents' input