Two couples affected by Becker muscular dystrophy discuss the challenges and joys of making a relationship work when one partner has a chronic disease

posted on November 19, 2013 - 11:05am
After nine years of courtship, my partner Richard and I are discussing The Future. Children, marriage and home ownership are now notching out deeper spaces in our daily dialogue. Like many couples, we’re both scared of The Future. We’re concerned we won’t be fully equipped for what may come — those ripples that may make life a little more difficult. We’ve already experienced hardships that we’ve...

Keeping the romance alive when your caregiver is your partner

posted on December 31, 2009 - 1:19am
QUEST Vol. 17, No. 1
According to the National Family Caregivers Association, more than 50 million Americans care for loved ones with a chronic illness, disability or old age. Caregivers assist people with neuromuscular disease in accomplishing many tasks of daily living. From eating to grooming, dressing to transferring, traveling to sleeping, and more, caregivers truly make life fully possible.

Place your bets — it’s time to play

posted on March 1, 2007 - 10:27am
QUEST Vol. 14, No. 2
Dating. It’s a touchy subject — especially for people with disabilities. Which isn’t to say it should be avoided. Approached cautiously, with a strong sense of self-identity — yes. But never avoided. That way leads to living alone with 40 cats, all named Muffin. So, what can you do? Dating is a lot like playing poker. But instead of asking poker champ Phil Gordon for advice, here are some...
posted on November 1, 2006 - 2:21pm
QUEST Vol. 13, No. 6
I know when this piece is published I’ll be in the doghouse. The original title was “My Wild and Wacky Wife,” but I thought the new title might at least get me out more quickly. To be fair, she generally treats me almost as well as she treats our dog.
posted on November 1, 2006 - 1:40am
QUEST Vol. 13, No. 6
As a freelance writer, I’ve written on a variety of topics, such as marriage, stepping outside your comfort zone, laughter as a prescription for life, and fatigue. Ironically, these themes have all come together in a new chapter of my life: fatherhood.

MDA's National Personal Achievement Award recipient spreads inspiration, motivation wherever he goes

posted on November 1, 2003 - 1:02pm
Have even a brief conversation with Nicholas A. Johnson and you're likely to come away feeling motivated, upbeat and even inspired. Nick Johnson, on the job, at BR+A Consulting And that's just the way he wants it.

Men with Duchenne MD find independence within their reach

posted on October 1, 2002 - 11:33am
Recently, the dad of a young boy with Duchenne muscular dystrophy (DMD) was trying to explain to a child psychologist about certain educational choices his son needed to make in order to be well prepared for adulthood.