Joey Wells

posted on July 1, 2010 - 1:16pm
Featured in this issue: Books by young people affected with neuromuscular diseases include Through My Eyes by a former MDA goodwill ambassador, Joey Wells; and Still Dancing by anti-bullying expert Gabrielle Ford.Other reviewed books include Different Drummers, a novel about growing up in the 1960s with muscular dystrophy; Skating Forward, a collection of profiles of figure skaters who have...

As muscle weakness progresses, people give different answers

posted on April 1, 2009 - 8:07am
QUEST Vol. 16, No. 2
In this age of obsession about body image, when someone asks me if I want a piece of strawberry pie for dessert, I’m apt to decline. “No thanks. I need to maintain my girlish figure.” My playful reply is designed to conceal the fact that I’m actually assessing my ability, as a 40-pound skinny mini with spinal muscular atrophy type 2 (SMA2), to eat the pie.