International Spinal Muscular Atrophy Patient Registry

Should you sign up with a research registry about your disease?

posted on November 1, 2006 - 1:42pm
It seems as if everybody wants information about you these days. Try to get that rebate the salesman promised on your new computer, and the company wants to know how old you are, how much money you make and whether you went to college. Phone surveys want to know what you think of your congressional representative, whether you’re planning to sell your house and what radio stations you listen to.

Should you sign up with a research registry about your disease?

posted on November 1, 2006 - 1:42pm
QUEST Vol. 13, No. 6
It seems as if everybody wants information about you these days. Try to get that rebate the salesman promised on your new computer, and the company wants to know how old you are, how much money you make and whether you went to college. Phone surveys want to know what you think of your congressional representative, whether you’re planning to sell your house and what radio stations you listen to.