Thank you, Mom
MDA and Quest have done a great public service profiling the lives and achievements of the many amazing people with neuromuscular diseases. I’d like to celebrate the “Moms of MDA” and pay tribute to mothers who nurture these amazing people. My mother, who passed away Oct. 20, raised five wonderful children, two with spinal muscular atrophy. She showed such courage and stability...
Who: Lorinda Gonzalez, 20
Where: Vero Beach, Fla.
DX: Spinal muscular atrophy type 3; diagnosed at age 3, with symptoms since birth
Hospice focuses on patient's wishes
Smack in the middle of a frosty Michigan winter, Jackie Edwards Jr. was steaming like a hot summer day with anger.
Edwards was fuming mad because he had learned that his mother had passed up tickets to a Metallica concert; she worried it would harm his health.
Dawn Edwards feared that going to a raucous concert by the heavy metal band during cold weather would simply be too much for her son. At...