A drug approved in Europe to treat Lambert-Eaton myasthenic syndrome is now being tested in the United States; clinical trial participants sought

posted on November 18, 2011 - 6:00am
BioMarin Pharmaceutical of Novato, Calif., is conducting a multicenter study of 3,4-diaminopyridine phosphate (3,4-DAP), also known as amifampridine phosphate, in adults with Lambert-Eaton myasthenic syndrome (LEMS). There are eight U.S. trial sites, with additional sites planned for France, Germany, Italy, Poland and Spain.

Wheelchair users can visit the home of Big Ben with confidence

posted on October 1, 2011 - 11:03am
QUEST Vol. 18, No. 4
The prospect of traveling in a wheelchair to London, a city steeped with history dating back to the Romans, filled me with trepidation. Visions of cobblestone streets, buildings without elevators, and entryways with massive stairways had my heart racing with anxiety as I planned our first trip to London.
posted on May 1, 2008 - 9:43am
QUEST Vol. 15, No. 3
Our adventure started with a travel brochure from Grand European Tours. My wife, Debi, was intrigued by the bus and train tour through the Swiss Alps. Debi has a neuromuscular disease called spinal cerebellum ataxia, which causes poor balance and muscle weakness. She can take several steps with assistance, and uses a power wheelchair at home and a manual chair while traveling. Watercolor painting...
posted on July 1, 2005 - 2:06pm
QUEST Vol. 12, No. 4
Travel security Many of us with disabilities who travel in this post-Sept. 11 world have stories of encounters with wrongheaded security officials that ended in fury or humiliation. The frequency of these encounters may be diminishing, however. Early this year Sandra Cammaroto, program manager of the Transportation Security Administration’s Screening of Persons with Disabilities Program, produced...