attention deficit

Specialists, support groups and stimulant medications help families cope with the unusual cognitive and personality effects of type 1 myotonic dystrophy

posted on September 1, 2008 - 2:27pm
*Many people interviewed for this article asked not to be identified to protect the privacy of affected family members. “Everybody knows the word apathy,” says a California woman whose 25-year-old daughter’s type 1 myotonic dystrophy (MMD1, sometimes called DM1) was diagnosed just a few years ago. “People use the word loosely. I don’t think it does justice to the reality of this disease.”

Some children with MD have cognitive or emotional problems, along with physical disabilities

posted on December 1, 2002 - 7:45pm
Nancy Von Wald, director of the Turning Point School in Tucson, Ariz., asks a child to put a group of cards in a sequence and to tell a story about them.
posted on December 1, 2002 - 12:34pm
MDA publications "Facts About..." series of books “Journey of Love: A Parent’s Guide to Duchenne MD” “A Teacher’s Guide to Neuromuscular Disease” MDAchat,   Non-MDA publications