Refusing to be defined by his ALS, former NFL player Steve Gleason lives a life rich with purpose

posted on April 1, 2014 - 9:29am
In his eight-year NFL career as a safety and special teams standout for the New Orleans Saints, Steve Gleason never had the opportunity to play in a Super Bowl. Though Gleason’s not the type to live with regrets, watching his former team win it all in 2009 — just two years removed from his retirement — must have been bittersweet. But this year, during an otherwise lackluster game, Steve Gleason...

The search for therapies and cures must be accompanied by the cultivation of the best and brightest researchers

posted on October 1, 2011 - 3:33pm
QUEST Vol. 18, No. 4
All MDA grants have the same basic goal: moving promising treatments through the “drug development pipeline,” from early discoveries in the lab, to clinical trials, to actual therapies that can be prescribed in the clinic. But some MDA grants are designed to accomplish this goal not only by funding research but by encouraging the “best and the brightest” young scientists to become future...

A nonprofit led by a teacher and minister with limb-girdle MD again is offering postgraduate scholarships and small quality-of-life grants

posted on April 8, 2011 - 4:57pm
(Update 9/14/11: The 2011 scholarship winners have been selected. To view a list of winners visit Applications for quality of life grants continue to be accepted and are awarded on an ongoing basis.)

An MDA-sponsored meeting explored progress in five key therapeutic strategies under development for neuromuscular diseases

posted on March 18, 2011 - 3:30pm
Moving therapeutic strategies from the laboratory to clinical trials and ultimately to the market as treatments was the theme of the MDA National Scientific Conference held March 13-16, 2011, in Las Vegas. Some 300 people attended the conference, the first in a planned series of such MDA-sponsored meetings that will emphasize new research and current medical care. The majority of presenters and...

Winners with ALS, SMA and LGMD receive support to pursue postgraduate education

posted on September 17, 2010 - 2:29pm
Three accomplished scholars determinedly pursuing their educations while living with neuromuscular disease are the first winners of the CMMS Deshae Lott Ministries outreach program scholarships. “We were so impressed,” with the winning candidates, said Deshae Lott, 39, a teacher and minster from Bossier City, La., who founded the nonprofit that bears her name. “These three show great strength of...

ALS TDI's May 2010 research update addressed changes: a new mouse model, new projects, a paradigm shift and a model for faster drug development

posted on June 1, 2010 - 12:33pm
In its quarterly Research Update Webcast on May 18, 2010, the ALS Therapy Development Institute (ALS TDI) informed viewers of a "paradigm shift" in TDI research. The changes include the addition of a new mouse model to the Institute's preclinical drug development program and an increased emphasis on the importance of biological indicators called "biomarkers."  The webinar also addressed the...

Wireless switch with Bluetooth technology responds to the faintest muscle movement

posted on July 1, 2009 - 2:38pm
QUEST Vol. 16, No. 3
Jayne uses the Impulse sensor to start scanning the wheelchair-driving software, which displays the drive function and a directional grid on his wheelchair-mounted laptop.

Laptop provides lifeline for man paralyzed by ALS

posted on May 1, 2008 - 9:41am
QUEST Vol. 15, No. 3
After 20 years of living with ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease), David Jayne can’t speak and is immobile except for minimal facial movement. But he’s able to communicate, drive his wheelchair, maintain his independence and control his environment — all thanks to his Toshiba Tecra laptop.