The story you're about to read is true; the names have been changed to protect the guilty

posted on October 1, 2011 - 3:31pm
I’m fortunate in that many of my paid caregivers have been professional, reliable, respectful, pleasant and hard- working. Some have been with me for so long we think of them as family. Whether it was sharing my excitement over self-publishing a novel and moving into our new house, or helping me through the misery of my first months of diabetes and the nightmare of my mother’s breast cancer, they...
posted on October 1, 2010 - 11:15am
QUEST Vol. 17, No. 4
Featured in this issue: Books by people affected by neuromuscular diseases include For the Love of Pete: The Story of Our ALS Journey by Marlene Hoyland Zaleski, whose husband died of ALS; The Samurai and the Mujahideen, a story set during the Soviet-Afghanistan war by Ben Dowling, who has Friedreich's ataxia; Shadows on the Ceiling: A Memoir of Disability and Abuse, a tale of a woman's...

It's common, offenders often close to home

posted on May 1, 2008 - 9:36am
QUEST Vol. 15, No. 3
“Yesterday I was battered,” begins an entry in the blog of a man with ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). In a series of such entries over a period of months, the writer (now deceased) described how his hired caregiver abused him, including taking away the bell he used to summon help, ignoring him when he did ring and ridiculing his efforts to communicate as his...