Health Care

A look at symptoms, diagnosis, treatments and current MDA-supported research into this complex autoimmune disorder

posted on June 15, 2015 - 1:01pm
In recognition of June being National Myasthenia Gravis Awareness Month, MDA is examining the disease from several perspectives. This article offers an overview of signs, symptoms, diagnosis and treatments for myasthenia gravis (MG), as well as information on drugs that people with MG should avoid.

A physician with mitochondrial myopathy describes undergoing and taking care of her tracheostomy

posted on March 31, 2011 - 10:23am
QUEST Vol. 18, No. 2
I am writing this article about getting a tracheostomy for others with muscular dystrophies. Many patients are reluctant to have the procedure done because they fear they will lose the ability to talk or to swallow. Neither is true. And, the new trach tubes make it possible to easily take care of a tracheostomy and the tubes.

Pediatric cardiologists and other experts at an MDA-sponsored meeting exchanged information and planned studies regarding the heart in DMD and BMD

posted on January 28, 2011 - 2:10pm

Physicians and scientists will meet Jan. 21-22, 2011, in Columbus, Ohio, at an MDA-sponsored conference about cardiomyopathy in Duchenne muscular dystrophy

posted on January 18, 2011 - 4:06pm
Experts from around the world will gather Jan. 21-22, 2011, at an MDA-sponsored conference about the heart in Duchenne muscular dystrophy (DMD).

New guidelines for physicians seek to improve and standardize diagnosis, treatment and medical management of individuals with congenital muscular dystrophy

posted on January 5, 2011 - 3:17pm
Editor's note: This article was updated on Jan. 6, 2011, to include a direct, free link to the Journal of Child Neurology article about the CMD guidelines. A panel of 82 international experts — including several MDA grantees and clinic directors — has produced the first-ever care guidelines for the congenital muscular dystrophies (CMD), a group of genetic neuromuscular disorders that have their...
posted on January 1, 2011 - 4:55pm
QUEST Vol. 18, No. 1
Melinda Guttry, a physical therapist in Rehabilitation Services at the University of California, Los Angeles Health System, has worked closely with neurologist Susan Perlman and with Friedreich's ataxia (FA) patients since the mid-1980s.

Both offer health benefits, and enhance convenience and independence for wheelchair users

posted on January 1, 2011 - 4:35pm
QUEST Vol. 18, No. 1
Mobile standers and standing wheelchairs are for people who want to stand without having to stand still. Medical professionals agree that standing is good for the musculoskeletal system, and most experts recommend standing 30 to 60 minutes a day, depending on users’ level of tolerance. (Note: Always consult a doctor before starting a standing program.)
posted on January 1, 2011 - 2:20pm
QUEST Vol. 18, No. 1
From childhood science classes, you may remember the periodic table listing all the known chemical elements. You might also recall, in approximately the center of the table, the symbol “Fe” signifying the metal iron. Produced inside large stars in distant space, iron is the most common element on Earth. From earliest times, humans have used it in everything from paint pigments, cookware and tools...