A look at symptoms, diagnosis, treatments and current MDA-supported research into this complex autoimmune disorder

posted on June 15, 2015 - 1:01pm
In recognition of June being National Myasthenia Gravis Awareness Month, MDA is examining the disease from several perspectives. This article offers an overview of signs, symptoms, diagnosis and treatments for myasthenia gravis (MG), as well as information on drugs that people with MG should avoid.
posted on March 1, 2008 - 4:06pm
QUEST Vol. 15, No. 2
NOTE: If your local bookstore doesn’t have a book mentioned in Quest, usually it can be ordered through the store by providing the author’s name, title and/or publisher. Often, books also can be ordered online. Reviewed books are not available through MDA. The Gift of Participation: A Guide to Making Informed Decisions About Volunteering for a Clinical Trial, by Kenneth Getz, 2007, 360 pages, $19...
posted on November 1, 2007 - 10:08am
QUEST Vol. 14, No. 6
The Spinal Muscular Atrophy Standard of Care Committee released a “consensus statement” on clinical care in spinal muscular atrophy (SMA), published in the August issue of the Journal of Child Neurology, that sets guidelines aimed at standardizing the management of this disease. See the entire document.

Corticosteroids are useful treatments for some neuromuscular diseases, but finding the right medication and dosing schedule isn't always smooth sailing

posted on May 7, 2007 - 1:58pm
QUEST Vol. 14, No. 3
Corticosteroids (also known as glucocorticoids) that are commonly used to treat neuromuscular disorders include prednisone, prednisolone and deflazacort. All are powerful medications that suppress the immune system and decrease inflammation.
posted on May 1, 2007 - 8:47pm
QUEST Vol. 14, No. 3
Items in this article report on clinical trials in: Duchenne muscular dystrophy and Friedreich's ataxia.
posted on May 1, 2007 - 2:09pm
QUEST Vol. 14, No. 3
Date Trial or Study Benefits Side Effects 1970s-1980s 4 trials used prednisone in high doses ranging from 1.5 mg/kg/day to 5 mg/kg on alternate days prolongation of walking by about 2 years in one study; one study showed no benefit
posted on May 1, 2007 - 2:07pm
QUEST Vol. 14, No. 3
Side effects of prednisone and other corticosteroids include increased appetite and weight gain, as well as osteoporosis (porous and weakened bones). Appropriate nutritional supplements while being treated with prednisone include calcium and Vitamin D. Meal planning suggestions Weight gain is a side effect of prednisone regardless of how much a person eats. However, since many people on...
posted on May 1, 2007 - 2:05pm
QUEST Vol. 14, No. 3
Carlie Brinker of Millersburg, Ohio, tries to walk to the mailbox and back a couple of times a day and to her sister’s house, half a mile away, if the weather is good.