Careers

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...

After eight years in prison, Terrence Stevens, who has spinal muscular atrophy, founded a nonprofit that’s helping children of inmates succeed in life

posted on December 30, 2010 - 11:27am
For eight long years, Terrence Stevens — who goes by the nickname "T-Wheels" — had the dubious distinction of being the only inmate in the New York state prison system with “muscular dystrophy.” Stevens actually has spinal muscular atrophy (SMA) type 3, but he says no one in prison knew or cared what his true diagnosis was. Conditions were horrible for inmates with disabilities, says Stevens...

Researchers hope to learn how people with impaired mobility manage to do their jobs

posted on December 28, 2010 - 2:42pm
If you’re a person with a disability who also manages to hold down a job, researchers are interested in finding out how you do it. A new study is looking for people who work outside the home at least 20 hours a week and who also have significant mobility impairments, such as difficulty moving their legs and/or arms.

‘The wheelchair comics are coming,’ warns Michael O’Connell (Emery-Dreifuss muscular dystrophy), who loves to leave ’em laughing

posted on May 28, 2010 - 2:54pm
 What started out as an item on O'Connell's bucket list is now an almost nightly occurance: performing comedy on stage. “So this woman comes up and tries to give me a dollar. I wanted to say, ‘Hey! Just because I’m in a wheelchair doesn’t mean I’m homeless!’”

When the recession brought an end to his 25-year journalism career, Peter Callas Jr. remembered his parents’ message: Never give up

posted on April 15, 2010 - 12:35pm
Peter Callas Jr. remembers as if it were yesterday the day his father gave him “the F.D.R. talk.” It was 1973, and Peter Jr., then 13 years old, had just been diagnosed with facioscapulohumeral muscular dystrophy (FSHD).

Nonprofit offers scholarships and practical support to people with disabilities

posted on April 1, 2010 - 4:11pm
QUEST Vol. 17, No. 2
Scott Hatley is the 30-year-old co-founder of Incight, a nonprofit organization based in Portland, Ore., that helps people with disabilities set and achieve career goals through scholarships, mentoring relationships, microloans and other resources.

New Web sites help people with disabilities find jobs 

posted on March 11, 2010 - 10:07am
The Social Security Administration (SSA) and other service providers have launched several new Web sites for people with disabilities who want to work. The Choose Work site contains first-person accounts by people who have used the SSA's work incentives; videos, including a seminar on work incentives; help finding local resources; and more. The site can be found at http://www.choosework.net/.

Make your workspace work for you

posted on October 1, 2009 - 11:35am
QUEST Vol. 16, No. 4
This special package of articles is chock-full of ideas on customizing your workspace for function and efficiency.