The daylong, MDA-supported conference held Aug. 24, 2013, focused on all aspects of Becker muscular dystrophy; videos are now online
The 2013 MDA-supported Becker Muscular Dystrophy Conference, held Aug. 24 in Baltimore and co-hosted by MDA and Johns Hopkins Medicine, was "high-energy" with "phenomenal" presenters, says Annie Kennedy, MDA's senior vice president of advocacy, who attended and helped organize the meeting.
Some 130 people attended in person and many more, including some from outside the United States, attended...
The answer is a resounding 'maybe'
Ever wonder if your child with a neuromuscular disease would do better in a different learning environment, but don’t know what else is out there? One option may be a charter school — or maybe not.
Charter schools are public schools
Hurry — deadline to apply is Feb. 18
If you are a college student or recent graduate with a disability and are interested in a career in international affairs, there’s a new internship program launching this summer in Washington, D.C. However, if you want to be considered, you’ll need to hurry — the online deadline is February 18.
CMMS Deshae Lott Ministries is accepting applications for quality-of-life grants and academic scholarships from people with disabilities; the next deadline is Nov. 1, 2012
A small nonprofit organization is offering limited grants for in-home care to people with physical disabilities. The next quality-of-life grant application deadline is November 1, 2012.
Expert information about higher education, living independently at college and employment is available in upcoming MDA webinars for young adults with neuromuscular diseases
Update (Aug. 22, 2012) — Links have been added to the archived versions of each webinar.
MDA’s public webinar series has a host of offerings in August for young adults with neuromuscular diseases who are interested in higher education and employment.
As your child's needs change, so will his or her school experience
No matter what grade your child is about to enter this fall, you will have all the concerns of every parent — and a whole lot more because of your child’s neuromuscular disease. There are ways to make the transition to a new school year smoother — and MDA can help.
Before the school year starts, make an appointment to visit your child’s new teacher and scope out the school. Talk...
Spring is in the air, and you know what that means — it’s time to prepare for your child’s IEP or 504 plan meeting.
Whether you’re just getting started or you’re an old pro, it’s always a good idea to get your game plan ready ahead of time.
To help alleviate the stress that can go along with IEP meetings, here’s a roundup of some useful resources that can strengthen your IEP/504 plan toolkit and...