CMMS Deshae Lott Ministries is accepting applications for quality-of-life grants and academic scholarships from people with disabilities; the next deadline is Nov. 1, 2012
posted on October 5, 2012 - 4:55pm
A small nonprofit organization is offering limited grants for in-home care to people with physical disabilities. The next quality-of-life grant application deadline is November 1, 2012.
Expert information about higher education, living independently at college and employment is available in upcoming MDA webinars for young adults with neuromuscular diseases
posted on August 7, 2012 - 9:15am
Update (Aug. 22, 2012) — Links have been added to the archived versions of each webinar.
MDA’s public webinar series has a host of offerings in August for young adults with neuromuscular diseases who are interested in higher education and employment.
As your child's needs change, so will his or her school experience
posted on July 1, 2012 - 3:03pm
No matter what grade your child is about to enter this fall, you will have all the concerns of every parent — and a whole lot more because of your child’s neuromuscular disease. There are ways to make the transition to a new school year smoother — and MDA can help.
Getting started
Before the school year starts, make an appointment to visit your child’s new teacher and scope out the school. Talk...
posted on April 9, 2012 - 12:00pm
Spring is in the air, and you know what that means — it’s time to prepare for your child’s IEP or 504 plan meeting.
Whether you’re just getting started or you’re an old pro, it’s always a good idea to get your game plan ready ahead of time.
To help alleviate the stress that can go along with IEP meetings, here’s a roundup of some useful resources that can strengthen your IEP/504 plan toolkit and...
posted on April 9, 2012 - 11:15am
Ron Hayes didn't get a diagnosis of type 1 myotonic dystrophy (MMD1 or DM1) until he was 54, long after he had enjoyed academic and athletic success in high school and college, had earned a master's degree in public health, had married and had children, and had established himself in a career.
Quest shares lessons from parents who have successfully helped their children with muscle diseases grow into self-reliant adults
posted on October 1, 2011 - 3:32pm
When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.”
His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy — to MDA summer camp.
“We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy,...
The Desktop Desk helped a California student with DMD finish school despite diminished hand and arm strength
posted on October 1, 2011 - 8:15am
David Davison is a friendly, outgoing young man who loved attending school. But last year, as David’s Duchenne muscular dystrophy progressed, his arm and hand strength decreased to the point where he could no longer participate in many classroom activities.
Then one day, David’s special education class at Placer High School in Auburn, Calif., received a gift from a local service club: a new...
