Sometimes conquering fear of the uncertain and finding a world of possibilities is just a train ride away

posted on October 8, 2015 - 9:45am
Have you ever felt trapped, isolated or suffocated by transportation-related issues? I’m sure those of you who use a wheelchair, like I do — I have spinal muscular atrophy — or rely on some other form of mobility aid have felt these things a time or two. I know I have. But in the past couple of years, I’ve been determined to face my greatest fear, which includes...

The right tools for the transfer

posted on March 1, 2006 - 10:02am
QUEST Vol. 13, No. 2
You’re still transferring independently, but you’ve fallen a couple of times on your way from the wheelchair to the bed. Your caregiver still lifts you in and out of the bathtub, but her groans from back pain are getting louder. It’s time to start thinking about a mechanical or powered lift system that you can use at home, and maybe one for work, too. Risky business

Katrina highlights need for disability disaster planning

posted on November 1, 2005 - 9:47am
QUEST Vol. 12, No. 6
When Hurricane Katrina devastated the Gulf Coast region in late August, she blew destruction equally upon all in her path. Yet those with disabilities endured additional challenges and dangers both during and after the storm. Many people with disabilities faced more difficulty in evacuating, greater inconvenience — and in some cases life-threatening danger — because of the loss of electrical...
posted on September 1, 2005 - 4:10pm
QUEST Vol. 12, No. 5
When it comes to Halloween, few outfits can beat a wheelchair costume for pure wow! An endless variety of clever wheelchair costumes started life as a box and some coat hangers. Other materials include foam core, sheets, wrapping paper, clear packaging tape, spray paint and creative parents. Most wheelchair costumes can be made for under $10. Remember some basic safety tips, such as making sure...
posted on September 1, 2005 - 4:08pm
QUEST Vol. 12, No. 5
At one time or another, I've broken almost all of the Ten Commandments of Wheelchair Safety. But it's time to smarten up before I'm condemned to the fiery pits of the emergency room or the wheelchair repair shop. This article breaks down the importance of each wheelchair safety rule and, I hope, will help you learn from my mistakes so you don't have to repeat them.
posted on September 1, 2005 - 3:36pm
QUEST Vol. 12, No. 5
In 1986, my older daughter, Katie, who had spinal muscular atrophy type 2 (SMA2), was ill and stayed home from eighth grade. Abruptly, she went into respiratory arrest. I gave her CPR, called 911, and gave her some more CPR. The paramedics stabilized her, and we left immediately for the hospital. Now you may be thinking that this was the emergency, but it was only half of it. My younger daughter...
posted on July 1, 2005 - 2:06pm
QUEST Vol. 12, No. 4
Travel security Many of us with disabilities who travel in this post-Sept. 11 world have stories of encounters with wrongheaded security officials that ended in fury or humiliation. The frequency of these encounters may be diminishing, however. Early this year Sandra Cammaroto, program manager of the Transportation Security Administration’s Screening of Persons with Disabilities Program, produced...
posted on March 1, 2005 - 10:59am
"I sometimes wonder if the kids in high school who called me names think of me now,” Gabrielle Ford wrote in “From Where I Sit: From a Cocoon to a Butterfly,” Quest, July-August 2004. “I wonder if they remember how they tripped me, knocked my books out of my hands, slammed my locker shut, threw spit wads at me, and hit and bruised my legs.”