Sometimes conquering fear of the uncertain and finding a world of possibilities is just a train ride away

posted on October 8, 2015 - 9:45am
Have you ever felt trapped, isolated or suffocated by transportation-related issues? I’m sure those of you who use a wheelchair, like I do — I have spinal muscular atrophy — or rely on some other form of mobility aid have felt these things a time or two. I know I have. But in the past couple of years, I’ve been determined to face my greatest fear, which includes...
posted on September 1, 2007 - 11:54am
QUEST Vol. 14, No. 5
Three times I broke my right foot. Three times in the same place — directly below my big toe. Strangers would ask why I was on crutches and wearing a cast, and I concocted elaborate stories to explain my temporary impairment. “Skiing, over the holidays,” I’d say. “Car accident. The vehicle was totaled so a broken foot is a minor inconvenience.” “Dancing. My partner has two left feet.”
posted on July 1, 2007 - 1:45pm
QUEST Vol. 14, No. 4
Find what you need to know about accessible housing.

All-terrain fun and excitement

posted on May 1, 2007 - 3:41pm
QUEST Vol. 14, No. 3
Can’t is a four letter word. With an all-terrain wheelchair, you can enjoy a day at the beach, hiking with your friends, or plowing through rocks, gravel or snow. "It’s great that people are getting out and doing all of those different things,” said John Egan of Natural Access of Santa Monica, Calif. “Some people who use wheelchairs are actually doing more with their lives than people who don’t...

Emergency prep essential for people with disabilities

posted on May 1, 2007 - 2:20pm
QUEST Vol. 14, No. 3
Someone once said, “No one plans to fail, they simply fail to plan.” What would you do if your water and other vital utilities were cut off for days? How would you use lifesaving medical equipment requiring electricity? Have you registered with emergency personnel as needing special assistance? What would you do with your pets if you had to go to a shelter where only certified service animals...

Are off-road vehicles safe for kids with neuromuscular diseases?

posted on March 1, 2007 - 11:35am
QUEST Vol. 14, No. 2
Kids who live in areas with paths, open fields, dirt roads, beaches, sand dunes or dry washes often want to join friends and family riding all-terrain vehicles (ATVs). But is it safe for a kid with a muscle disease to operate an ATV?

How to avoid a bumpy ride with your care assistant

posted on March 1, 2007 - 9:50am
QUEST Vol. 14, No. 2
Personal care attendants, personal assistants, attendant caregivers: Whatever you want to call them, we all know how important they are to our independence. Depending on somebody isn’t easy. Here are some ways to make the road smoother. Communication is key

Without spending a fortune

posted on September 1, 2006 - 3:10pm
QUEST Vol. 13, No. 5
If you aren’t ready just yet to design and build that dream home with perfect accessibility, there are a lot of things you can do in the meantime to solve everyday dilemmas.