Psychological Factors

One woman with spinal muscular atrophy uses the power of invisibility to her advantage

posted on October 8, 2015 - 9:27am
I was born with a superpower, only it took most of my life to realize that I had it. I had suspicions when I was younger, but never fully understood the breadth and depth of this superpower until recently. I have the power to be invisible. I can be in a restaurant and the wait staff doesn’t see me. I can be going down the street where people are aggressively distributing pamphlets, and I...
posted on May 1, 2006 - 2:52pm
QUEST Vol. 13, No. 3
Finding a sitter to care for the complex needs of a child with neuromuscular disease can be daunting. There are so many things to consider. Can the sitter lift my child? Perform important functions such as suctioning? What if something happens to the wheelchair? These and hundreds more “what ifs” can make getting a sitter seem too overwhelming to attempt.
posted on May 1, 2006 - 9:25am
QUEST Vol. 13, No. 3
When you turn on the television or settle into a comfy chair at the movie theater, wouldn’t it be nice to see some kids like you? Of course, there’s still room for improvement, but TV shows and movies, especially those created for young children, are developing more characters with disabilities.
posted on July 1, 2005 - 1:32pm
QUEST Vol. 12, No. 4
Everyone strives to remain independent throughout life but none perhaps as passionately as the teenager who tastes independence and makes empowering life choices for the first time. Adolescence is no different for Middle Tennessean Josh Hamby, 18, with one exception. Josh has a partner.

Who do I think I am?

posted on May 1, 2005 - 9:36am
"I wonder if I’ve been changed in the night? Let me think: was I the same when I got up this morning? I almost think I can remember feeling a little different. But if I’m not the same, the next question is 'Who in the world am I?' Ah, that's the great puzzle!'" — Alice, "Alice's Adventure in Wonderland" by Lewis Carroll, 1865
posted on March 1, 2005 - 11:42am
"Don’t worry, Chris. Someday you’ll meet someone who’ll look past the wheelchair and see the real you." These words of consolation were uttered by one of my best friends, in the middle of a sleepless night during my sophomore year in college, in the wake of my being turned down for a date by the current "girl of my dreams." These words were ones of kindness, of compassion, of encouragement,...
posted on March 1, 2005 - 11:20am
Miranda Jackson’s first signs of muscle weakness came in first grade. A bright youngster with an engaging smile, she struggled not only with lack of coordination from myotonic muscular dystrophy (MMD), but also with pain from a form of juvenile arthritis and depression from bipolar disorder.
posted on March 1, 2005 - 10:59am
"I sometimes wonder if the kids in high school who called me names think of me now,” Gabrielle Ford wrote in “From Where I Sit: From a Cocoon to a Butterfly,” Quest, July-August 2004. “I wonder if they remember how they tripped me, knocked my books out of my hands, slammed my locker shut, threw spit wads at me, and hit and bruised my legs.”