Psychological Factors

One woman with spinal muscular atrophy uses the power of invisibility to her advantage

posted on October 8, 2015 - 9:27am
I was born with a superpower, only it took most of my life to realize that I had it. I had suspicions when I was younger, but never fully understood the breadth and depth of this superpower until recently. I have the power to be invisible. I can be in a restaurant and the wait staff doesn’t see me. I can be going down the street where people are aggressively distributing pamphlets, and I...
posted on June 1, 1999 - 11:25am
Joan and Tim Lafferty receive a respite allotment from the Area Agency for Developmental Disabilities in Nashua, N.H., under the state Division of Health and Human Services. That allotment goes toward baby sitters and short-term respite. Through Medicaid, the couple has a home health aide two nights a week. "Having two sons with muscular dystrophy, after a while you get tired," Joan Lafferty...
posted on July 31, 1997 - 5:00pm
After decades of stereotyped, often demeaning portrayals, has Hollywood gotten any better at showing the complexity of living with a disability? For better or worse, physical disabilities have been an integral part of the cinematic experience, dating back to the birth of the movies a full century ago.

Coping with facial weakness in FSHD

posted on June 1, 1997 - 3:34pm
Songs tell us we're never fully dressed without a smile and exhort us to pack up our troubles in our old kit bags and — smile, smile, smile. Smiling mouths tell us to buy everything from toothpaste and shampoo to diamonds and automobiles, and stylized "smiley faces" peer at us from posters and stickers. There's more space in the brain devoted to muscle control of the face than to any other...