Personal Stories

Exploring the unique dynamic — its blessings and occasional hurdles — of one sibling caring for another with neuromuscular disease

posted on October 8, 2015 - 9:51am
In a small Detroit apartment, Sam Barash, 32, lives with and cares for his 20-year-old, soon-to-be 21, sister, Angela Barash, who is living with myotonic muscular dystrophy and myasthenia gravis.

Meet clinical psychologist and disability advocate Danielle Sheypuk

posted on July 7, 2014 - 9:12am
Quest Summer 2014
Danielle Sheypuk, Ph.D., doesn’t just talk about the idea that people with disabilities can have robust and fulfilling romantic lives — she lives it, too.

Feedback from Quest readers and the MDA community

posted on July 7, 2014 - 9:05am
Quest Summer 2014
Letters to the Editor: No fear

Refusing to be defined by his ALS, former NFL player Steve Gleason lives a life rich with purpose

posted on April 1, 2014 - 9:29am
Quest Spring 2014
In his eight-year NFL career as a safety and special teams standout for the New Orleans Saints, Steve Gleason never had the opportunity to play in a Super Bowl. Though Gleason’s not the type to live with regrets, watching his former team win it all in 2009 — just two years removed from his retirement — must have been bittersweet. But this year, during an otherwise lackluster game, Steve Gleason...

Living with diminishing physical ability means losing some independence, but it doesn’t have to mean less adventure

posted on April 1, 2014 - 9:25am
Quest Spring 2014
Kristal Hardin Independence. It is unique to the human experience. People fight for it. Toddlers to teens demand it. It is the way we live. So when a debilitating disease threatens to take away the thing we cherish the most — our independence — most of us channel our inner “Rocky” and refuse to go down without a fight. 

Meet Reagan Imhoff, MDA's 2014 National Goodwill Ambassador

posted on April 1, 2014 - 9:09am
Quest Spring 2014
Most people in the MDA community will recognize 8-year-old Reagan Imhoff right away from her unforgettable butterfly-themed dance performance at the 2012 MDA Show of Strength Telethon.

A strong support system makes it possible for one gifted student with Duchenne muscular dystrophy to pursue his dreams

posted on January 9, 2014 - 9:31am
Quest Winter 2014
Raymond Walter isn’t your typical teenager. Having graduated from high school at age 14 and from college at 18, he’s already knee-deep in his doctoral studies in mathematics and physics as a Distinguished Doctoral Fellow and a National Science Foundation Graduate Research Fellow at the University of Arkansas at age 19. 

My crutches were a source of anxiety about not looking ‘normal,’ until I learned to let go by just holding on to them

posted on January 9, 2014 - 9:27am
Quest Winter 2014
When I fell several months ago and couldn’t get up under my own power, I knew it was time to let go. Or rather, time to finally grab a hold. Christopher Anselmo For the first 26 years of my life, I could walk on my own with confidence. But on that day, as I propped myself up using the bumper of a car and a mailbox, I realized that was no longer the case.