Legislation and Policy

MDA families eager for research breakthroughs take active roles to accelerate therapy development and spread awareness of MDA's mission

posted on July 14, 2015 - 3:19pm
Children and adults living with neuromuscular diseases are not only awaiting progress in the search for treatments and cures; they are directly supporting and advancing that progress in real and significant ways.

Making the Internet more accessible

posted on May 1, 2007 - 3:32pm
QUEST Vol. 14, No. 3
The Internet started in the late 1960s with a network connecting computers at four universities in California to allow them to share information. Today, more than 400 million computers are connected to the Internet and more than 1 billion users tap the World Wide Web (technically a part of the Net) to find information on everything from weather to war, from chess to chat rooms.
posted on November 1, 2006 - 1:37pm
QUEST Vol. 13, No. 6
Many people with disabilities struggle to receive long-term care in their homes and avoid going to nursing homes. Similarly, many now living in nursing homes would move back into their own homes and communities if adequate services could be...
posted on July 1, 2006 - 4:47pm
QUEST Vol. 13, No. 4
Anne Gasser, West Reading, Pa. Charcot-Marie-Tooth disease Next Christmas I’m giving special awards
posted on July 1, 2006 - 4:44pm
QUEST Vol. 13, No. 4
It was an unlikely contest, but when the ADA and a law designed to look out for the family farmer came into conflict earlier this year, the ADA scored the knockout blow. In December, a U.S. District Court in Nebraska struck down a law banning corporate farming because it discriminates against those with physical disabilities, reported the Disability Policy Collaboration (DPC), a legislative...

Katrina highlights need for disability disaster planning

posted on November 1, 2005 - 9:47am
QUEST Vol. 12, No. 6
When Hurricane Katrina devastated the Gulf Coast region in late August, she blew destruction equally upon all in her path. Yet those with disabilities endured additional challenges and dangers both during and after the storm. Many people with disabilities faced more difficulty in evacuating, greater inconvenience — and in some cases life-threatening danger — because of the loss of electrical...
posted on September 1, 2005 - 4:13pm
QUEST Vol. 12, No. 5
Those of us with muscular dystrophy would most like a cure, but in the meantime we'd also like governmental policies that support the highest quality of life possible. Instead, those of us with severe disabilities are frustrated by long-term care policies that favor institutionalization and deny us our full rights as citizens.
posted on March 1, 2005 - 11:24am
When school and family are deadlocked over an IEP, the recently updated Individuals with Disabilities Education Act requires mediation be tried before calling a due process hearing. The IDEA is the law that governs special education. (See "A New IDEA.")