Independence

For many individuals with neuromuscular diseases, finding a meaningful career can make for a richer, more independent life

posted on October 8, 2015 - 9:47am
Going from being a high school or college student to an independent, working adult can be challenging for almost anyone. But for individuals who live with neuromuscular diseases, the transition into the workforce can be especially overwhelming.  But young adults in the MDA community who have successfully made this employment leap agree that the rewards of meaningful work are worth the...

MDA's Personal Achievement Award recipient for New York City is thriving in the Big Apple

posted on September 8, 2011 - 8:57am
Tabitha Estrellado is living her dream. She’s a 27-year-old career woman with a nice apartment in Manhattan. She loves her job, has a sweet commute, and writes music and performs locally in her spare time.

Get those cameras ready! MDA is seeking Make-a-Muscle pix and photos of accessibility makeovers

posted on July 28, 2011 - 10:33am
This summer, MDA is inviting everyone to participate in its new "Make a Muscle, Make a Difference" public awareness campaign by submitting photos of friends and family flexing their muscles for MDA. MDA also is seeking photos for its "Accessible Spaces Gallery" debuting in August on the MDA Transitions Resource Center, a website designed to help young people with muscle diseases make the...

High school graduation made me feel mature, but I grew up the day I realized that I've never been alone in dealing with my disability

posted on July 1, 2011 - 4:12pm
QUEST Vol. 18, No. 3
It didn’t happen during my childhood, when I walked around wobbly with a pediatric walker, smiling and conversing. It didn’t happen in my sophomore year of high school, after an emergency room visit led to an 11-day hospital stay and a diagnosis of type 1 diabetes. It didn’t happen my senior year of high school, after a four-day hospital stay to implant a pacemaker to regulate my slow heartbeat....
posted on July 1, 2011 - 2:11pm
QUEST Vol. 18, No. 3
ADA: More info Check out ADA Roundup 2011 for Quest’s annual review of the Americans with Disabilities Act.

A woman with ALS finds that a little self-advocacy goes a long way

posted on July 1, 2011 - 11:48am
QUEST Vol. 18, No. 3
I live in Tempe, Ariz., a lovely suburb of Phoenix. Two years ago, when I determined that it was no longer safe for me to drive due to the progression of my ALS (amyotrophic lateral sclerosis), I began to look for alternatives to depending on my husband, Phil, to drive me.

'Know Your Rights — The Fair Housing Act' will feature a discussion and Q&A of the law regarding housing rights for people with disabilities

posted on May 19, 2011 - 5:25pm
Are owners of apartment buildings required to have accessible units? Can they charge higher rent for them? And can they refuse to rent to a person with a service dog? These are just some of many questions about housing rights that will be answered Tuesday, May 24, 2011, during an MDA-sponsored webinar titled "Know Your Rights — The Fair Housing Act," beginning at 4 p.m. EDT, 2 p.m. MDT and 1 p.m...

Interactive Web pages offer resources on careers, education, independent living and more for youth and young adults with neuromuscular diseases, and their families

posted on May 18, 2011 - 10:04am
Navigating the transition from childhood to adulthood can be complicated. Young people confront numerous important changes at this time, including going off to college, moving away from home, starting a career, establishing friendships and falling in love. Young adults with disabilities may find it particularly challenging to find and utilize all available resources to help manage and coordinate...