Physical and Cognitive Disabilities Resources

by Bill Greenberg on December 1, 2002 - 12:34pm

"Facts About..." series of books

Journey of Love: A Parent’s Guide to Duchenne MD

A Teacher’s Guide to Neuromuscular Disease



The Complete IEP Guide: How to Advocate for Your Special Ed Child (2nd ed.), by Lawrence M. Siegel, 2000, Nolo Press,

From Emotions to Advocacy: The Special Education Survival Guide, by Pam Wright and Pete Wright, 2002, Harbor House Law Press,

Myotonic Dystrophy: The Facts, by Peter Harper, Oxford University Press, 2002.

Wrightslaw: Special Education Law, by Pete Wright and Pam Wright, 2002, Harbor House Law Press,

A Guide to the Individualized Education Program, by the Office of Special Education and Rehabilitative Services, U.S. Department of Education, 2000, free, (877) 4-ED-PUBS or

Office of Special Education Programs, part of the U.S. Department of Education. — Federation for Children with Special Needs. — IDEA Partnerships, federally funded projects to study the 1997 landmark reauthorization of the Individuals with Disabilities Education Act (IDEA). National summit in Arlington, Va., June 2003. — Minnesota-based parents’ organization to enhance quality of life of children and young adults with disabilities and their families.

Parent Training Information Centers (PTIs) — Funded by the U.S. Department of Education’s Office of Special Education Programs and the FCSN. — Extensive collection of resources about special education law, advocacy and related topics.

American Academy of Clinical Neuropsychology Offers a list of neuropsychologists who perform testing
(734) 936-8269 or (734) 936-8269

Veronica Hinton is recruiting boys with DMD and BMD up to age 16 for her ongoing studies of cognitive functioning in these disorders. She would prefer families in which an unaffected sibling or cousin is also available for testing. Parents will be given a detailed report of their child’s test results. Contact:
Robert Fee
Columbia University
(212) 305-2394 or (212) 305-2394

Click here to read "When Neuromuscular Disease Affects the Brain."

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