MDA Matters Summer 2012

From left: Latondra Chappell, Bryson Foster, Kennedy Healy, Justin Moy, Veronica Niño and Angela Wrigglesworth
by Quest Staff on July 1, 2012 - 3:00pm

QUEST Vol. 19, No. 3

Six to be profiled on MDA SHOW OF STRENGTH

MDA's annual Labor Day weekend telecast is coming right up.

Renamed MDA SHOW of STRENGTH, this three-hour entertainment special will have a new look, feel and format — for details, see MDA Show of Strength.

Six individuals have been selected to help tell viewers about life with neuromuscular disease. (Note: Click on photos to expand; rollover for cutline.)

Latondra Chappell, 14, of Charlotte, N.C., has central core disease. A social butterfly both in and out of school, Latondra is a good student who plays piano and loves spending time with her dog and family.

Bryson Foster, of Concord, N.C., is MDA’s 2012 National Goodwill Ambassador. The 12-year-old, who has Duchenne MD, is extremely articulate about his passions, which include sports and MDA.

Kennedy Healy, Omaha, Neb., is a high-achieving 17-year-old with spinal muscular atrophy (SMA). She will start at DePaul University in Chicago this fall, majoring in public relations and minoring in community services.

Justin Moy, 11, of Concord, Mass., enjoys school, singing, video games and coin collecting. A manual-wheelchair user due to congenital MD, he was involved in a half marathon in Chicago in 2011.

Veronica Niño, 44, of Friendswood, Texas, is a warm, funny and articulate assistant principal and mother of three, who uses a power chair due to ALS (amyotrophic lateral sclerosis).

Angela Wrigglesworth, 34, who has SMA, is a fourth-grade teacher in the Houston, Texas, area. An outspoken advocate on several fronts for people with disabilities, she was Ms. Wheelchair Texas 2004 and now is the executive director of the Ms. Wheelchair Texas Foundation.

Readers respond to Quest magazine survey

A big thank you to the nearly 750 Quest readers who responded to our reader survey this spring: 154 in print and 590 online. Five respondents selected by random drawing won a small cache of MDA prizes. But the big winner is Quest magazine, which will grow from your feedback. Below are a few preliminary tallies of responses.

Respondent demographics: More than 80 percent had a neuromuscular disease. The majority of respondents (80 percent) fell in the 41-80 age group.

Top 5 favorite article types (in order of preference): research; features about people living with disabilities; health care articles; product information; and MDA news.

Top 5 favorite Quest sections (in order of preference): Research Updates; InfoQuest; Product Peeks; Quest Tech; MDA Advocacy report.

Internet usage: More than 40 percent of print responders do not use the Internet at all. An almost equal number of online responders (41.6 percent) are online more than 11 hours a week.

How do you read Quest? Among those who mailed us their answers, 90 percent read Quest in print only. Among online respondents, 42 percent read Quest in print only, and 41 percent read it both in print and online.

Top 5 accessibility modifications made in the past year: none (41 percent of all respondents); bathroom (40 per- cent); ramps (26 percent); bedroom (17 percent); and door knobs and hinges (16 percent).

Top 5 accessibility devices purchased in the past year: cane/walker (31 percent of all respondents); none (26.5 percent); scooter (20 percent); leg braces (20 percent); and power wheelchair (20 percent).

Top suggestions for improving Quest (this question was only in the online survey): more health care related articles (44.3 percent of all respondents); notification when new content is posted (42 percent); and more product news (37 percent).

Thank you again to all who took the survey!

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