MDA Matters Spring 2013

MDA summer camp - it's just around the corner!
Article Highlights:
  • MDA summer camp is available to children ages 6 to 17 who are registered with MDA.
  • Looks like a good year for MDA fundraising, thanks to the Association's army of volunteers.
  • The MDA/ALS Newsmagazine is now exclusively online with timely and relevant ALS news.
  • Luke Christie is set to serve a third term as MDA National Youth Chairman.
by Quest Staff on April 1, 2013 - 9:07am

Quest Vol. 20, No. 2

Camp's a-coming!

Take a peek. It’s just around the corner … “the best week of the year!” Also known as MDA summer camp, children ages 6 to 17 who are registered with MDA can attend camp at no cost to their families. Nearly 80 accessible camp sessions across the country are supported by MDA, offering a wide variety of activities, which may include fishing, archery, horseback riding, adapted sports, and arts and crafts.

If it sounds like a great deal, you’re right. But it also means space will be limited, and applications are considered on a first-come, first-served basis. So make sure you contact your local MDA office as soon as possible to request a summer camp application. (Don’t know how to contact your local office? Call 800-572-1717 or go to MDA locator and enter your ZIP code into the search box.)

If you’d like something to remind you of camp the other 51 weeks of the year, check out the MDA Summer Camp General Store. There you’ll find T-shirts, hats, pants, tank tops, sweatshirts, water bottles and duffle bags — all emblazoned with the MDA summer camp logo that means “good times ahead!”

Thanks to an army of MDA volunteers ...

… The country turned green with Shamrocks this spring! Numbers are still coming in, but it looks to be a record year. A big shout-out to all our participating retailers and to the MDA families who visited Shamrocks locations, thanked retailers and bought one of those little green or gold mobiles that raise big money for MDA programs.

… Some 140 MDA Muscle Walks took to the streets! These high-energy gatherings brought together individuals, families, sponsors, researchers, clinicians and others in an exuberant display of strength. Kudos to all who raised funds and walked (either individually or as part of a team); there are a few Walks still to be held, so contact your local MDA office to volunteer.

… MDA Lock-Ups and Fill the Boot drives will be sizzling this summer! Fundraising events like these not only support MDA research and services, but raise community awareness of muscle disease — and provide a chance for local MDA communities to get together and have a lot of fun. Contact your local MDA office to learn how you can help.

MDA/ALS Newsmagazine at your fingertips 24/7

The MDA/ALS Newsmagazine (ALSN), which had been published quarterly, is now exclusively an online publication. Go to the ALSN Web page to find timely and relevant ALS news articles published weekly and monthly, as well as weekly blogs from people with ALS, their families, researchers, advocates and others.

If you’re not all that familiar with reading online magazines, fear not: At the top of the ALSN home page, in bright red, is a link that says: Check out your guide to the site! It leads to an easy-to-follow “site map” that tells you what’s there and how to use it.

Luke Christie on campus at Furman University with fellow Kappa Alpha members.

Luke re-ups as MDA National Youth Chairman

Wow. Time really does fly. Remember back in 2006 when we were introduced to a precocious 12-year-old kid from Due West, S.C., with a personality larger than life? That’s when Luke Christie was named MDA’s National Goodwill Ambassador (Luke, who has spinal muscular atrophy, then went on to serve another year in 2007). Believe it or not, that kid is now a young man — a sophomore at Furman University in Greenville, S.C., pursuing a degree in communications.

Although his college career and myriad interests take up much of his time, we’re happy to announce that Luke has again agreed to serve as the MDA National Youth Chairman for 2013, a job he has held since 2009. In this capacity, he spearheads the efforts of thousands of teenagers and young adults who help with the Association’s lifesaving mission. Through appearances at sponsor and volunteer events and through media interviews, Luke supports the MDA cause.

Two of Luke’s upcoming appearances will be at the DECA International Career Development Conference in Anaheim, Calif., on April 24–26; and the Kappa Alpha National Convention in San Antonio, Texas, Aug. 1–4.

No votes yet
MDA cannot respond to questions asked in the comments field. For help with questions, contact your local MDA office or clinic or email See comment policy