MDA Mailbag Fall 2012

by Quest Staff on October 1, 2012 - 9:00am

QUEST Vol. 19, No. 4

The ‘power’ of soccer

Have you ever wanted to become a national athlete and thought it was impossible because of your disability? I used to think that, too, before discovering the sport of power soccer. It is a sport designed specifically for wheelchairs. You play indoors on a gym floor with a special soccer ball and a guard fitted to your electric wheelchair. A typical game consists of two 20-minute halves. Each team has four players on the floor at a time and there are specific rules of play. It is a great way to meet others, compete and have fun! I have played on a team for four years now and am currently playing for the Minnesota Magic. In June, we traveled to Tampa to compete in the BraunAbility Premier Cup. It was three days of intense soccer games. The Magic was not expected to win because it was the first year we were playing at the top level. We beat all odds and took first place becoming the No. 1 power soccer team in the nation!

I have learned the value of hard work, teamwork and determination. The other players on my team have become my best friends, and we love to hang out a practice, tournaments and beyond. I have also gotten to know many other people with disabilities as we travel all over to play other power soccer teams. I would encourage others to check out this awesome sport and give it a try! For more information, go to Power Soccer USA.

Nick Misgen
Lakeland, Minn.
Duchenne muscular
dystrophy

Disability products too expensive

I like getting my Quest magazine; it’s my wish book for things I need and want. I am on a fixed income. I live in my mother’s house with my husband and brother, who also has myotonic muscular dystrophy.

The companies you show in your magazine want to make money off unfortunate people who cannot afford any of their products.

Tonita Sanchez
Santa Maria,
Calif.

Editor’s note: Remember to check MDA’s equipment program for help obtaining needed items. Contact your local MDA office for more information.

IVIG therapy helped me

I just received the July-September 2012 issue of Quest and am writing in regard to an article about IVIG [Guidelines released for intravenous immunoglobulins]. I was diagnosed with polymyositis in November 2008, and was started on IVIG treatments at that time. I went from barely being able to walk, climb stairs, stand up, lift my arms, or get into bed without lifting my legs with my hands, to a fully functional person. If they want evidence, I am here to attest to it. Without these treatments I would probably be in a wheelchair now. It was a definite answer to prayer that God sent me to a doctor who believed in IVIG for me and that it worked.

Diane L. Crispell
Levittown,
N.Y.

Pen Pals

I have enjoyed receiving the Quest magazine. It has been very helpful to me. I wanted to let you know how much the Pen Pals meant to me. I have no computer so I have to write letters. I think it’s good therapy also. I met a lady through the Pen Pals and she had CMT. She just passed away in June. The years we shared writing and me visiting her were a blessing. I have inclusion-body myositis and can still write. I’m very thankful. I hope someday soon you can bring back this wonderful service.

Joyce Clift
Concord,
Calif.

I’m 47, with spinal muscular atrophy and confined to the bed 24/7. I agree with some of what Darlene Fairchild from Redding, Calif., had to say in her letter to the editor [Understand why Pen Pals had to go, MDA Mailbag, Summer 2012]. I miss the Pen Pals section a great deal.

A little over a year ago, I had my name, address and email in the Pen Pals section. I received more emails than I did snail mail, which was a bummer, because I enjoy writing letters the old-fashioned way too. Sometimes it’s just easier, faster and cheaper to email. I’ve been “pen palling” for almost 20 years now. I had 50 pen pals once from all over the world. Stamps got very expensive, and I had to drop a lot of my pen pals. I still love receiving mail, it brightens my day.

I want Darlene to know that I think what she did with the Christmas cards was a very sweet gesture. If I had received a Christmas card from you, I would’ve sent you one back in return.

Becky Rhodes
Moultrie, Ga.

Love online Quest

This was my first time using the Quest online magazine, however, it won't be my last! I receive the Quest magazine through snail mail, however, it does not come every month. So having this online version will make it easy to access whenever I'd like! Thank you!

The Rev. Robert P. Moran Jr.
Bowie, Md.
limb-girdle muscular dystrophy

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