Employment

In recognition of this landmark legislation, MDA has pulled together a variety of articles by and for people with neuromuscular diseases

posted on July 26, 2010 - 10:55am
Two decades ago, on July 26, 1990, President George H.W. Bush signed into law the landmark civil rights legislation called the Americans with Disabilities Act, intended to eliminate barriers for people with disabilities. Two decades later, daily life has become much more accessible and fairer in many ways, not only for people with disabilities but for everybody. And yet — in physical...

MDA's Personal Achievement Award recipient for New York City is thriving in the Big Apple

posted on September 8, 2011 - 8:57am
Tabitha Estrellado is living her dream. She’s a 27-year-old career woman with a nice apartment in Manhattan. She loves her job, has a sweet commute, and writes music and performs locally in her spare time.

A father’s vision for helping his son with DMD deal with depression has grown into a popular restaurant and training ground for people with disabilities

posted on July 1, 2013 - 9:15am
Quest Vol. 20, No. 3
“Employment to someone with a disability is a privilege, not an obligation,” says Garth Larcen. “People with disabilities, they just want to be part of a team.” If anyone should know what he’s talking about, it’s Garth. He’s speaking from both knowledge and experience — as a father, as an employer and as a job trainer.

The annual BMD conference, held in Baltimore and streamed live online, is centered on the theme ‘optimizing the lived experience of BMD’

posted on August 22, 2013 - 12:31pm
MDA and John Hopkins Medicine will present the 2013 national Becker Muscular Dystrophy Conference Saturday, August 24, in Baltimore. Free to all participants with BMD and their family and friends, the conference can be attended in person or online.

The daylong, MDA-supported conference held Aug. 24, 2013, focused on all aspects of Becker muscular dystrophy; videos are now online

posted on September 11, 2013 - 12:15pm
The 2013 MDA-supported Becker Muscular Dystrophy Conference, held Aug. 24 in Baltimore and co-hosted by MDA and Johns Hopkins Medicine, was "high-energy" with "phenomenal" presenters, says Annie Kennedy, MDA's senior vice president of advocacy, who attended and helped organize the meeting. Some 130 people attended in person and many more, including some from outside the United States, attended...

Stacy Zoern liked the wheelchair-accessible Kenguru electric car from Hungary, so she started a Texas company to produce them

posted on February 22, 2012 - 3:23pm
Stacy Zoern has entered yet a new phase in her already eventful life — this time at 25 miles per hour.

Three up-and-coming clothing companies — created  by four young men with neuromuscular diseases — are offering unique designs

posted on June 24, 2010 - 5:15pm
Four young men with powerful entrepreneurial spirits and a flair for design are making inroads in the country’s custom clothing industry. Although each of the three companies offers its own distinctive designs, the owner/operators have a lot in common.

U.S. Dept. of Justice Seeks Job Applicants with Disabilities

posted on June 1, 2009 - 4:08pm
Attention job seekers with disabilities interested in working in the U.S. Department of Justice: This is a good time to apply. U.S. Attorney General Eric Holder recently issued a memo calling on the Department of Justice (DOJ) to hire and promote people with disabilities, with the goal of making DOJ “a model employer with a diverse workforce that includes people with disabilities.”
posted on December 31, 2009 - 1:12am
QUEST Vol. 17, No. 1
Chad McCruden, 36, of Owing Mills, Md., has Friedreich’s ataxia. He was laid off in May 2009 from his job as a work incentive specialist at an independent living center. McCruden applied for Social Security Disability Insurance (SSDI) benefits in June, was approved late in October and received his first check in December (plus five months’ worth of retroactive benefits).

Butting in with a view on employment

posted on January 5, 2015 - 9:23am
Quest Winter 2015
Considering the title of this column, From Where I Sit, I’m surprised more people have not written about butts. After all, for those of us wheeling around at a seated height — I live with type 2 spinal muscular atrophy (SMA) — other people’s butts are often what we see from where we sit.