Maryland boy to represent MDA
posted on February 1, 2002 - 12:02pm
He's a best-selling author ... he regularly swaps e-mails with Oprah Winfrey ... and President Jimmy Carter calls him "one of my best friends."
He's also a huge fan of songwriter "Weird Al" Yankovic, loves to play video games, and has an impressive rock collection.
Such is the amazing world of Matthew J.T. Stepanek, the MDA 2002 National...
In recognition of this landmark legislation, MDA has pulled together a variety of articles by and for people with neuromuscular diseases
posted on July 26, 2010 - 10:55am
Two decades ago, on July 26, 1990, President George H.W. Bush signed into law the landmark civil rights legislation called the Americans with Disabilities Act, intended to eliminate barriers for people with disabilities.
Two decades later, daily life has become much more accessible and fairer in many ways, not only for people with disabilities but for everybody. And yet — in physical...
posted on October 1, 2010 - 3:15pm
MDA has just launched a lively new national campaign that’s putting more muscle power into fundraising efforts for the Association’s research and services programs.
Painting and teaching motivate MDA’s 2011 Personal Achievement Award recipient for Tennessee, who has dermatomyositis
posted on September 16, 2011 - 12:33pm
Jason Peck’s memory of his childhood has some missing images: running, jumping, swinging, and sliding into home.
Although Peck, who received a dermatomyositis diagnosis at age 4, missed out on playing ball in the backyard with his buddies, he discovered early on that he had a talent his speedy friends didn’t — the ability to draw rather well. And he’s never looked back.
Caring and dedicated amateur chef receives top honor posthumously
posted on October 1, 2011 - 3:34pm
Wherever he went, Scott Crane spread joy.
At the Corner Bakery Café where he worked, he was known for being helpful and kind. When he volunteered for MDA and other organizations, he was always upbeat and enthusiastic. Even during long hospital stays due to respiratory issues, he remained cheerful and positive.
“Spread smiles to everybody everywhere each and every day,” was one of his mantras.
Survey confirms importance of family caregivers to adults with muscle disease
posted on October 1, 2011 - 10:37am
In the recent National Transitions Survey conducted by MDA of our young adult and adult communities, 40 percent of respondents said their daily physical care assistance was provided by family caregivers; 41 percent indicated the majority of their transportation needs are met by a parent, spouse or family caregiver; and 26 percent included family financial support among their primary sources of...
'Shambassadors' inspire Shamrock programs to be the best they can be
posted on January 1, 2012 - 2:45pm
In the weeks surrounding St. Patrick’s Day, all across the country, participating retailers sell green and gold clover-shaped MDA Shamrocks mobiles for $1 and $5.
The immensely popular Shamrocks fundraising program — which celebrates its 30th anniversary this year — has grown in income every single year, even during economic downturns, says Brian Hunter, MDA vice president of business development...
If passed into law, the ABLE Act would create special savings accounts to be used for disability-related expenses without threatening other government benefits
posted on January 17, 2012 - 2:42pm
A big sports fan with a bigger heart, this 11-year-old is ready to speak out for MDA
posted on April 9, 2012 - 12:00pm
Bryson Foster dreams big. No, make that B-I-G.
But those with big hearts usually do.
"Even if you dream small, those small things can turn into big things in the end," says Bryson, with wisdom beyond his 11 years.
In true sports vernacular, he adds: "Go big or go home."
So, Bryson continues to dream about one day being the starting quarterback for his beloved Cincinnati Bengals, or a professional...
posted on April 9, 2012 - 12:00pm
MDA Art Collection masterpieces cover land and sea
This year, the MDA Art Collection celebrates 20 years of focusing attention on the creative abilities and accomplishments of children and adults with neuromuscular diseases. During that time, MDA has organized and/or sponsored more than 40 children’s art workshops in conjunction with fine arts museums and galleries nationwide.
