Daily Living

1

Power wheelchair users urged to speak up to preserve first-month purchase option

posted on July 10, 2009 - 9:32am
People who receive a power wheelchair through Medicare may lose the option to buy the chair immediately, under a proposed change to Medicare rules being considered by committees dealing with healthcare reform in the U.S. House of Representatives. The proposed rule change would eliminate the first-month purchase option for power wheelchairs provided by Medicare, requiring all Medicare...
1

High school senior Lindsay Lee, who has congenital muscular dystrophy, seeks to combine math and medicine.

posted on December 3, 2009 - 4:10pm
Many people, upon noting the academic credentials of high school senior Lindsay Lee, might characterize her as a math whiz. The 17-year-old, who has congenital muscular dystrophy (CMD), is quick to demur. “Oh, I don’t know if I’d say that. I just really like math … and, well … I’m pretty good at it.”
1

Sidelined by bone cancer, limb-girdle MD and depression, Steve Williams found a way to get back out on the open road

posted on July 20, 2010 - 3:55pm
The “passenger” in Steve Williams’ motorcycle sidecar doesn’t say much, but if it could talk, it probably would have plenty of stories to tell.
1

Winners with ALS, SMA and LGMD receive support to pursue postgraduate education

posted on September 17, 2010 - 2:29pm
Three accomplished scholars determinedly pursuing their educations while living with neuromuscular disease are the first winners of the CMMS Deshae Lott Ministries outreach program scholarships. “We were so impressed,” with the winning candidates, said Deshae Lott, 39, a teacher and minster from Bossier City, La., who founded the nonprofit that bears her name. “These three show great strength of...
2

Provisions for more home- and community-based services are taking effect, but states may need a push to implement them

posted on November 24, 2010 - 2:14pm
Nearly 3 million disabled and elderly Americans rely on Medicaid to provide home health aides, personal care attendants, group homes, adult day care, meals, transportation and other services that enable them to stay in their homes and communities and out of nursing homes.
5

Having a disability doesn’t mean you can’t find the love of your life; young adults with neuromuscular disease share their stories and advice

posted on February 14, 2012 - 11:54am
If you have limited movement, how do you make the first move on a date? Is it OK to bring a personal care attendant on a date? At what point would you let a "significant other" provide personal care for you?