Man with nemaline myopathy takes his chances on Who Wants To Be A Millionaire
posted on October 10, 2009 - 10:48am
Sargon de Jesus has always been a trivia buff and a fan of game shows that test trivia smarts. So when he earned an appearance on the popular TV game show Who Wants To Be A Millionaire, de Jesus was "totally psyched" and ready to take his shot at some big money.
Busy man
As someone who has cultivated a vast array of interests and talents, de Jesus possesses a broad and varied base of experience...
Power wheelchair users urged to speak up to preserve first-month purchase option
posted on July 10, 2009 - 9:32am
People who receive a power wheelchair through Medicare may lose the option to buy the chair immediately, under a proposed change to Medicare rules being considered by committees dealing with healthcare reform in the U.S. House of Representatives.
The proposed rule change would eliminate the first-month purchase option for power wheelchairs provided by Medicare, requiring all Medicare...
High school senior Lindsay Lee, who has congenital muscular dystrophy, seeks to combine math and medicine.
posted on December 3, 2009 - 4:10pm
Many people, upon noting the academic credentials of high school senior Lindsay Lee, might characterize her as a math whiz.
The 17-year-old, who has congenital muscular dystrophy (CMD), is quick to demur. “Oh, I don’t know if I’d say that. I just really like math … and, well … I’m pretty good at it.”
Sidelined by bone cancer, limb-girdle MD and depression, Steve Williams found a way to get back out on the open road
posted on July 20, 2010 - 3:55pm
The “passenger” in Steve Williams’ motorcycle sidecar doesn’t say much, but if it could talk, it probably would have plenty of stories to tell.
Provisions for more home- and community-based services are taking effect, but states may need a push to implement them
posted on November 24, 2010 - 2:14pm
Nearly 3 million disabled and elderly Americans rely on Medicaid to provide home health aides, personal care attendants, group homes, adult day care, meals, transportation and other services that enable them to stay in their homes and communities and out of nursing homes.
A free iPhone application helps shoppers find accessible routes, food, bathrooms in malls
posted on January 28, 2010 - 9:17am
A new, no-cost iPhone application is now available to help shoppers locate facilities like elevators and accessible restrooms in the country’s larger malls.
Called FastMall, the application (app) from Web developer MindSmack may prove especially helpful to wheelchair users and others who want to chart accessible pathways among a maze of retail outlets. For outside the mall, FastMall has a helpful...
Having a disability doesn’t mean you can’t find the love of your life; young adults with neuromuscular disease share their stories and advice
posted on February 14, 2012 - 11:54am
If you have limited movement, how do you make the first move on a date? Is it OK to bring a personal care attendant on a date? At what point would you let a "significant other" provide personal care for you?
Tom Mecke of San Antonio, who has Duchenne muscular dystrophy, has spent five decades — and counting — following his dreams
posted on May 12, 2010 - 3:35pm
January 17 was a particularly special day for Tom Mecke. It was his 50th birthday, and he had beaten a pretty long set of odds to get there.
Mecke, a San Antonio, Texas, resident all his life, has Duchenne muscular dystrophy (DMD). He and his parents got the news that he has the disease when he was 6 years old. They also were told he’d probably die before he turned 20.
