Legislation and Policy

Tips to strengthen your case for coverage of power mobility devices

posted on November 1, 2008 - 10:24am
QUEST Vol. 15, No. 6
Getting insurance coverage for a power wheelchair shouldn’t be a struggle. But Medicare, Medicaid or private insurance denials are not uncommon, especially when high-tech features like tilt-and-recline, seat elevators, power leg lifts and standing features are added. But as the sports experts often say, a strong defense wins championships.
posted on March 1, 2005 - 11:24am
When school and family are deadlocked over an IEP, the recently updated Individuals with Disabilities Education Act requires mediation be tried before calling a due process hearing. The IDEA is the law that governs special education. (See "A New IDEA.")

Even in tough times, this self-directed service option is giving Medicaid consumers more flexibility and saving states money

posted on March 12, 2010 - 2:30pm
Cash and Counseling, a government program that gives Medicaid recipients in 15 states direct control over their personal-care spending, has been so successful that a majority of states are now adopting it or similar programs. A new report tells why and how.

In recognition of this landmark legislation, MDA has pulled together a variety of articles by and for people with neuromuscular diseases

posted on July 26, 2010 - 10:55am
Two decades ago, on July 26, 1990, President George H.W. Bush signed into law the landmark civil rights legislation called the Americans with Disabilities Act, intended to eliminate barriers for people with disabilities. Two decades later, daily life has become much more accessible and fairer in many ways, not only for people with disabilities but for everybody. And yet — in physical...

Photos of MDA families, sponsors and advocates who met with policymakers to share stories and gather support in August & September 2010

posted on October 4, 2010 - 5:26pm
This year's Fly Out was a resounding success, with dozens of MDA families, sponsors and advocates meeting with members of Congress and their staffs in states and districts from coast to coast (and even in Hawaii). In all of these meetings, which took place in the home districts of more than 30 U.S. senators and representatives throughout August and September, families shared their stories...

MDA families, clinicians and advocates met with lawmakers and staff in 27 states; more meetings planned throughout the year

posted on October 4, 2010 - 5:35pm
“Sometimes change starts with the little things, like sharing your story with a member of Congress.” These words, spoken by MDA Health Care Service Coordinator Carolyn McNutt after an August meeting with Arkansas Rep. Mike Ross, succinctly capture the purpose of the MDA Fly Out and make clear why the fledgling program is so successful.

Provisions for more home- and community-based services are taking effect, but states may need a push to implement them

posted on November 24, 2010 - 2:14pm
Nearly 3 million disabled and elderly Americans rely on Medicaid to provide home health aides, personal care attendants, group homes, adult day care, meals, transportation and other services that enable them to stay in their homes and communities and out of nursing homes.

Funds from the Affordable Care Act are now available in most states to help people move out of, or avoid, institutional care

posted on May 6, 2011 - 3:38pm
The federal government is moving ahead with plans to expand access to home and community based services for individuals who receive Medicare and Medicaid benefits. HHS Secretary Kathleen Sebelius announced in April that $3.7 billion in federal funds will be made available to implement the Community First Choice Option, a provision of the new health care law (the Affordable Care Act) which...

Survey confirms importance of family caregivers to adults with muscle disease

posted on October 1, 2011 - 10:37am
QUEST Vol. 18, No. 4
In the recent National Transitions Survey conducted by MDA of our young adult and adult communities, 40 percent of respondents said their daily physical care assistance was provided by family caregivers; 41 percent indicated the majority of their transportation needs are met by a parent, spouse or family caregiver; and 26 percent included family financial support among their primary sources of...

If passed into law, the ABLE Act would create special savings accounts to be used for disability-related expenses without threatening other government benefits

posted on January 17, 2012 - 2:42pm