posted on December 31, 2009 - 1:10am
Featured products: Stairlift ** Inflatable tub and bathroom aides ** Crutch ** Wheelchairs and wheelchair accessories ** Nebulizer ** Golf ball retriever ** Adaptive clothing.
A co-op model of care for adult children
posted on December 31, 2009 - 1:00am
In the 1980s, our worlds changed forever, when our separate families each received the devastating news that our children had Duchenne muscular dystrophy. At the time of the diagnosis, we were told our boys probably would live into their mid-teens, or possibly early 20s.
Well, here we are — it’s 2010 and our boys are still here. Jason (Adele’s son), Patrick and David range in age from 24 to 30....
The new myMDA online group Trailblazers connects young adults ages 18 to 35 who have muscle diseases.
posted on January 7, 2010 - 9:28am
Attention, young adults ages 18 to 35: A new online group, Trailblazers, aims to provide you with a virtual gathering spot where you can share thoughts and ideas, challenges, resources and recipes for success.
Trailblazers is one of several dozen groups on MDA’s e-community myMDA, which connects people around the country who are coping with muscle diseases.
posted on December 31, 2009 - 1:12am
Chad McCruden, 36, of Owing Mills, Md., has Friedreich’s ataxia. He was laid off in May 2009 from his job as a work incentive specialist at an independent living center.
McCruden applied for Social Security Disability Insurance (SSDI) benefits in June, was approved late in October and received his first check in December (plus five months’ worth of retroactive benefits).
A state rehabilitation program remodeled my bathroom — and my life
posted on March 31, 2011 - 11:44am
I never thought I would be so excited about getting a new toilet, sink and shower. But my new fully wheelchair-accessible bathroom has made such a difference in my life, my attitude and my outlook that I can truly say this makeover has been a life-changing event.
More than 10 years ago, I received a diagnosis of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). Over the years, I’ve...
Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities
posted on September 28, 2011 - 5:31pm
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.
Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks.
Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...
posted on December 31, 2009 - 1:02am
Featured in this article: Coordinate your helpers with myMuscleTeam ** H1N1: No to the nose vaccine ** Ambassador Abbey is on a roll ** MDA equipment loan program makes a difference ** myMDA and Quest
A new National Institutes of Health questionnaire seeks public input to improve the agency’s information services
posted on October 10, 2009 - 10:55am
Important questions for Americans: What health care issues are important to you? Where do you get most of your health care information? If a loved one were sick with cancer or Alzheimer’s disease, where would you go for information?
The National Institutes of Health (NIH) wants to know.
A new NIH program seeks to obtain information from a wide cross-section of America that the agency hopes will...
posted on July 1, 2011 - 2:11pm
ADA: More info
Check out ADA Roundup 2011 for Quest’s annual review of the Americans with Disabilities Act.
