Transition Programs

A strong support system makes it possible for one gifted student with Duchenne muscular dystrophy to pursue his dreams

posted on January 9, 2014 - 9:31am
Quest Winter 2014
Raymond Walter isn’t your typical teenager. Having graduated from high school at age 14 and from college at 18, he’s already knee-deep in his doctoral studies in mathematics and physics as a Distinguished Doctoral Fellow and a National Science Foundation Graduate Research Fellow at the University of Arkansas at age 19. 

News and updates from the MDA community

posted on January 5, 2015 - 9:05am
Quest Winter 2015
Shining STAR: The MD STARnet project expands to learn more about neuromuscular disease

For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence

posted on July 14, 2015 - 3:23pm
Quest Summer 2015
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.

Having a disability doesn’t mean you can’t find the love of your life; young adults with neuromuscular disease share their stories and advice

posted on February 14, 2012 - 11:54am
If you have limited movement, how do you make the first move on a date? Is it OK to bring a personal care attendant on a date? At what point would you let a "significant other" provide personal care for you?
posted on October 1, 2009 - 3:10pm
QUEST Vol. 16, No. 4
Q: What could possibly be bad about children with neuromuscular diseases living longer life spans than has been common in the past? A: As these children become adolescents and then adults, they encounter a medical system and society that are not prepared to accommodate them.

Quest shares lessons from parents who have successfully helped their children with muscle diseases grow into self-reliant adults

posted on October 1, 2011 - 3:32pm
QUEST Vol. 18, No. 4
When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.” His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy — to MDA summer camp. “We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy,...
posted on July 1, 2011 - 2:11pm
QUEST Vol. 18, No. 3
ADA: More info Check out ADA Roundup 2011 for Quest’s annual review of the Americans with Disabilities Act.

Expert information about higher education, living independently at college and employment is available in upcoming MDA webinars for young adults with neuromuscular diseases

posted on August 7, 2012 - 9:15am
Update (Aug. 22, 2012) — Links have been added to the archived versions of each webinar. MDA’s public webinar series has a host of offerings in August for young adults with neuromuscular diseases who are interested in higher education and employment.

Get those cameras ready! MDA is seeking Make-a-Muscle pix and photos of accessibility makeovers

posted on July 28, 2011 - 10:33am
This summer, MDA is inviting everyone to participate in its new "Make a Muscle, Make a Difference" public awareness campaign by submitting photos of friends and family flexing their muscles for MDA. MDA also is seeking photos for its "Accessible Spaces Gallery" debuting in August on the MDA Transitions Resource Center, a website designed to help young people with muscle diseases make the...