posted on January 1, 2004 - 10:18am
Helping children understand their diagnoses
posted on July 1, 2006 - 2:23pm
Joanne Wechsler remembers when she first formally told her preschool-age son Adam that he “had muscular dystrophy.”
“I don’t have that!” he protested loudly. “I don’t have muscular dystrophy!”
posted on March 31, 2010 - 10:20pm
Jacob Gapko has compiled the first-ever bibliography of books about young people with muscular dystrophy, with help from a Carnegie-Whitney Award from the American Library Association.
Click on the title to access the bibliography:
Children and Young Adults with Muscular Dystrophy: An Annotated Bibliography
Michael Wogan, who had congenital muscular dystrophy and was killed in a Reno air show accident, enjoyed travel, airplanes and adventure
posted on September 21, 2011 - 9:00am
Michael Wogan had been looking forward to the trip to the National Championship Air Races in Reno, Nev.
According to his younger brother James, “Michael liked to get out and travel, and he was so excited about getting on a plane.”
Michael’s older brother Billy, 26 — who, like Michael, 22, and James, 19, has congenital muscular dystrophy (CMD) — was supposed to attend the show with their dad. When...
What doesn’t kill you makes you laugh really hard
posted on January 1, 2008 - 3:04pm
Early on, the Brothers Burcaw discovered the myriad sporting opportunities Shane’s power chair offered.
posted on July 1, 2007 - 4:56pm
Our son is wonderful,” says K.M., a 42-year-old San Francisco area events manager and the mother of a 7-year-old boy with Duchenne muscular dystrophy. “I couldn’t ask for anything more. He’s everything I ever wanted. Of course I wouldn’t want this disease, but he’s just such a great, sweet kid, and it’s been our hope and dream to give him brothers or sisters.
posted on October 1, 2009 - 3:26pm
When I was 12 years old, I received a diagnosis of Friedreich’s ataxia (FA), a rare neuromuscular disease. That’s also the year I met Ms. Wheelchair Maryland and started to dream of entering the Ms. Wheelchair pageant. But that goal quickly was overshadowed by the usual adolescent things.
