Personal Stories

posted on April 1, 2009 - 10:42am
QUEST Vol. 16, No. 2
During cool spring and fall weather, friends and neighbors gather around Tom’s fire pit down by his lake dock almost every Friday night. Some arrive by car, some by boat and some, meaning me, by wheelchair.
posted on April 1, 2009 - 4:34pm
QUEST Vol. 16, No. 2
While I lay on a plinth, a Swiss doctor gestured that I should lift up my left leg. He bear-hugged my leg and resisted its elevation with his full body weight. He grunted as he fought my movement. He wasn’t the only person prodding and inspecting me. A team of doctors, biokineticists and physiotherapists surrounded me. It was like the United Nations of medics. Besides the Swiss doctor, there was...
posted on January 1, 2009 - 3:43pm
QUEST Vol. 16, No. 1
Ms. Wheelchair Michigan spreads message of self-advocacy and inclusion
posted on January 1, 2008 - 3:04pm
QUEST Vol. 15, No. 1
Abbey Umali and her family have been familiar presences on the Jerry Lewis MDA Labor Day Telethon for the past two years. Now this winsome and charismatic 8-year-old from California steps further into the spotlight as MDA’s 2008 National Goodwill Ambassador. Anyone who watched Abbey during her live interviews on the Telethon isn’t apt to forget her, any more than they’re apt to forget angels of...
posted on January 1, 2008 - 2:51pm
QUEST Vol. 15, No. 1
Hello everyone. My name is Barbara and I’m a shoplifter. I stole a pair of Vanity Fair, beige, size 9 underwear. I know every criminal claims she isn’t guilty. And I’m not. Not really. After an evening of back-to-school shopping, I was settling into the passenger seat of our van when my husband Jim asked, “What’s this?” He stood under the beaming light of a suburban shopping center, waving the...
posted on January 1, 2008 - 2:54pm
QUEST Vol. 15, No. 1
Jason Hinkle Conveying a sense of Jason Hinkle’s dynamic personality in writing isn’t difficult after exchanging a few sentences with this California man.
posted on March 1, 2008 - 4:08pm
QUEST Vol. 15, No. 2
A very happy Dailey during the running phase of Georgia’s Peachtree City Triathlon last September
posted on May 1, 2008 - 9:52am
QUEST Vol. 15, No. 3
After Hurricane Katrina sent two pine trees crashing through our home, friends said, “It could have been worse.” And they were right. We could have lost our entire home. Jim, my husband, could have been unemployed. Weston, my son, could have spent his entire freshman year attending high school in Texas.
posted on July 1, 2008 - 1:50pm
QUEST Vol. 15, No. 4
FSHD researcher Patrick Reed at work in his lab.
posted on July 1, 2008 - 2:00pm
QUEST Vol. 15, No. 4
I’m 44 years old, and was officially diagnosed with Friedreich’s ataxia (FA) at age 19, so you might say this article is 25 years in the making! I can tell you with absolute certainty that over these 25 years I’ve learned that “we’re all in this together.”