The mother of a man with SMA seeks to inspire others to modify favorite family recipes to accommodate a loved one's eating difficulties
posted on January 1, 2011 - 1:31pm
Have you ever considered whether you eat to live or live to eat?
Food often holds a place of honor in our lives. Have you noticed how many events are accompanied by an element of food and drink? We have cake to celebrate birthdays and family reunion potluck picnics, as well as champagne toasts at a wedding.
posted on January 1, 2011 - 4:50pm
Note: Always consult your doctor before undertaking a weight loss plan.
I have always had problems with my weight. From the time I was 5, I’ve had round, chubby (some would say pinch-able) cheeks — and my cheeks weren’t my only round part.
When I was in high school I started really battling with weight. I decided to diet my senior year and lost 12 pounds. I thought that was the toughest dieting I...
Some consensus, much controversy about diet in three metabolic diseases
posted on November 1, 2007 - 2:09pm
Mark Tarnopolsky, a professor of pediatrics and medicine at McMaster University in Hamilton, Ontario, remembers clearly a patient he saw more than a decade ago, when he first began specializing in metabolism and nutrition.
The patient was an 8-year-old boy who had rapidly become weak and eventually almost completely paralyzed after exercising. His muscles were breaking down, spilling a protein...
After a year of planning, new recommendations for physicians caring for DMD patients have been released
posted on December 3, 2009 - 4:23pm
A comprehensive set of clinical care recommendations for the diagnosis and management of Duchenne muscular dystrophy (DMD) is now available to medical professionals and families.
The complete recommendations, in printable PDF format, can be read here:
posted on December 31, 2009 - 1:20am
A comprehensive set of clinical care recommendations for the diagnosis and management of Duchenne muscular dystrophy (DMD) is now available to medical professionals and families. The guidelines pull together recommendations previously released by other groups, such as the American Academy of Neurology, and clarify some areas in which consensus has been lacking.
Study finds that children and adults with SMA who can't walk but otherwise have good motor function are at risk for becoming overweight
posted on July 22, 2010 - 10:20am
Children and adults with types 2 and 3 spinal muscular atrophy (SMA) who are no longer walking have an increased risk of being overnourished and overweight if they otherwise have relatively good motor function, a multicenter study shows.
The results emphasize the importance of a "dedicated and experienced nutritionist" in SMA medical management, the researchers say.
About the study
posted on November 1, 2007 - 9:00pm
(Note: For more on this topic, see “What Not to Eat.”)
Hank Santini, Hillary Gibson and Vincent DaSilva all have Pompe disease (acid maltase deficiency) and say they’ve benefited enormously from the advice they received on nutrition and exercise from metabolic endocrinologist Alfred Slonim, now at Columbia University in New York.
