posted on September 1, 2007 - 10:07am
When Patrick and Sarah Foye of Pine Brook, N.J., had their baby boy, Adam, in 2001, there was little reason to believe at first that anything was wrong. "Adam had a normal birth," Sarah says, but things didn't go as well as expected in the months that followed.
Patrick is a physician specializing in rehabilitation, and Sarah is an occupational therapist, so they were quick to note that something...
Tips to strengthen your case for coverage of power mobility devices
posted on November 1, 2008 - 10:24am
Getting insurance coverage for a power wheelchair shouldn’t be a struggle. But Medicare, Medicaid or private insurance denials are not uncommon, especially when high-tech features like tilt-and-recline, seat elevators, power leg lifts and standing features are added.
But as the sports experts often say, a strong defense wins championships.
The diagnostic process in neuromuscular disease involves following many clues and rounding up the usual -- and not so usual -- suspects
posted on May 1, 2003 - 9:39am
*Note: In the print edition of Quest, this article was titled "Rounding Up the Usual -- and Not So Usual -- Suspects."
The scene is familiar to everyone who watches crime dramas. The safe has been opened, and the hotel guests' jewelry and other valuables are missing. What happened, and when, and who's responsible?
In this first of several reports on MDA's Clinical Conference, the role of genetics and immunology in different neuromuscular diseases is described
posted on March 19, 2012 - 3:08pm
More than 500 physicians, allied health care professionals and MDA staff attended the MDA's 2012 Clinical Conference in Las Vegas, March 4-7.
The program emphasized:
'Best practices' for treating various neuromuscular diseases are described in this third and final report on MDA's 2012 Clinical Conference
posted on April 19, 2012 - 6:00am
Several experts presented their views of "best practices" for care of people with neuromuscular disorders at MDA's 2012 Clinical Conference, held in Las Vegas March 4-7.
Many questions remain about optimal care in these disorders, but it's clear that attention to heart and respiratory function are of paramount importance.
This article looks at:
Specialists, support groups and stimulant medications help families cope with the unusual cognitive and personality effects of type 1 myotonic dystrophy
posted on September 1, 2008 - 2:27pm
*Many people interviewed for this article asked not to be identified to protect the privacy of affected family members.
“Everybody knows the word apathy,” says a California woman whose 25-year-old daughter’s type 1 myotonic dystrophy (MMD1, sometimes called DM1) was diagnosed just a few years ago. “People use the word loosely. I don’t think it does justice to the reality of this disease.”
After a year of planning, new recommendations for physicians caring for DMD patients have been released
posted on December 3, 2009 - 4:23pm
A comprehensive set of clinical care recommendations for the diagnosis and management of Duchenne muscular dystrophy (DMD) is now available to medical professionals and families.
The complete recommendations, in printable PDF format, can be read here:
posted on October 1, 2009 - 3:10pm
Q: What could possibly be bad about children with neuromuscular diseases living longer life spans than has been common in the past?
A: As these children become adolescents and then adults, they encounter a medical system and society that are not prepared to accommodate them.
posted on July 1, 2007 - 4:56pm
Our son is wonderful,” says K.M., a 42-year-old San Francisco area events manager and the mother of a 7-year-old boy with Duchenne muscular dystrophy. “I couldn’t ask for anything more. He’s everything I ever wanted. Of course I wouldn’t want this disease, but he’s just such a great, sweet kid, and it’s been our hope and dream to give him brothers or sisters.
The latest advances in diagnosis, medical management and the status of therapy development for neuromuscular diseases were covered at MDA's 2012 Clinical Conference
posted on March 9, 2012 - 2:28pm
The 2012 MDA Clinical Conference, held in Las Vegas March 4 -7, gave more than 500 attendees an opportunity to learn from top experts about the latest advances in diagnosis, medical management and emerging therapies for neuromuscular diseases.
