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Doctors Talk Heart to Heart

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Pediatric cardiologists and other experts at an MDA-sponsored meeting exchanged information and planned studies regarding the heart in DMD and BMD

posted on January 28, 2011 - 2:10pm

Although it’s clear that people with Duchenne and Becker muscular dystrophies should be closely monitored and treated by heart specialists, doctors and researchers at a recent MDA-sponsored meeting say there still are many unanswered questions about optimal clinical care of the DMD/BMD-affected heart.

New DMD Care Recommendations

Comment count: 17

After a year of planning, new recommendations for physicians caring for DMD patients have been released

posted on December 3, 2009 - 4:23pm

A comprehensive set of clinical care recommendations for the diagnosis and management of Duchenne muscular dystrophy (DMD) is now available to medical professionals and families. The complete recommendations, in printable PDF format, can be read here:

Housing		Independence
Personal Stories		Psychological Factors
Service Animals		Safety
Legislation and Policy		Taxes

College And Beyond		Learning Disabilities
IEP and 504 Plans		MDA Summer Camps
Transition Programs

Diagnosis and Genetics		Drugs
Insurance and Costs		MDA Clinics
Medical Procedures		Exercise and Sports
Nutrition

Adolescents and Young Adults		Children with an MD
Parents with an MD		Siblings

Research Administration		Endocrine Myopathies
Metabolic Diseases of the Muscle		Motor Neuron
Muscular Dystrophies		Neuromuscular Junction
Other Myopathies		Research Updates
General Research		Diseases of the Peripheral Nerve
Inflammatory Myopathies		Clinical Trials and Studies