People you meet through MDA activities can be a great source of tips and referrals for your independence questions. In addition, Quest has published many stories on all the topics mentioned in these articles.
Talk to your local Center for Independent Living (CIL), which can be located through the Independent Living Research Utilization project directory. www.ilru.org
Avoiding Attendants from Hell: A Practical Guide to Finding, Hiring & Keeping Personal Care Attendants, by June Price, Science & Humanities Press, 1998
Caregivers and Personal Assistants, by Alfred H. DeGraff, Saratoga Access Publications, 2002
American Association of People with Disabilities
Enabling Romance: A Guide to Love, Sex and Relationships for the Disabled (and the People Who Care About Them), by Ken Kroll and Erica Levy Klein, No Limits Communications, 2001
Women with Physical Disabilities: Achieving and Maintaining Health and Well-Being, by Danuta M. Krotoski, Margaret A. Nosek, and Margaret A. Turk, Paul Brookes Publishing, 1996
Trade Schools, Colleges & Universities
State departments of Vocational Rehabilitation or Education
Centers for Medicare and Medicaid Services
Disability and Aging
Federal Employment of People with Disabilities
Job Accommodation Network
Job-Hunting for the So-Called Handicapped or People Who Have Disabilities, by Richard Nelson Bolles and Dale S. Brown, Ten Speed Press, 2001
(877) 267-2323, press 5
Or call your state Medicaid or Social Security office
Office of Disability Employment Policy
Has information about starting a business.
Plan for Achieving Self-Support (PASS)
Lets you set aside money toward a goal such as college expenses, supplies to start a small business or transportation, without threatening Social Security benefits.
Social Security’s Ticket to Work Program
Assisted Living Facilities
Assisted Living Federation of America
Assisted Living Directory
Assisted Living Info
Association for Community Living
National Center for Assisted Living
Section 8 Made Simple: Using the Housing Choice Voucher Program to Assist People with Disabilities, by Ann O’Hara and Emily Cooper, Technical Assistance Collaborative, 2003
Free PDF download
U.S. Department of Housing and Urban Development
Also known as the Architectural and Transportation Barriers Compliance Board.
An advocacy organization promoting supported communities for people with disabilities.
Americans with Disabilities Act Mediation Program
(U.S. Department of Justice)
Disabled Rights: American Disability Policy and the Fight for Equality, by Jacqueline Vaughn Switzer, Georgetown University Press, 2003
Independent Living Research Utilization project (ILRU)
Directory of Statewide Independent Living Councils (SILC)
U.S. Department of Justice Disability Rights Section
(Editor's note: In 2009, MDA released "Road Map to Independence for Young Adults," a guide to becoming your own advocate and living successfully with neuromuscular disease. You may download a copy of the guide at no charge by visiting http://mda.org/publications/independence-road.html.)
Links to a large volume of transition-related resources.
Healthy and Ready to Work National Center
Resources to help youth with special health care needs transition to adulthood with health care, funding, employment and maximum independence.
The Road Ahead: Transition to Adult Life for Persons with Disabilities (2nd edition), ed. by Keith Storey, Paul Bates and Dawn Hunter, Training Resource Network, 2008
University of Washington
Adolescent Health Transition Project
Free downloadable transition publications, including: Health History Summary for Teens, Adolescent Autonomy Checklist, an adolescent transition resource notebook and more (some in Spanish).
Call your State Department of Transportation and local Center for Independent Living (CIL) to find out about local accessible transportation options.