Good Advice from Women Who've Been There

Article Highlights:
  • Women with neuromuscular disease who have had children, and the physicians who’ve cared for them, offer some experience-based advice.
  • Find a doctor who is supportive and knowledgeable and keep all members of your medical team informed of your condition.
  • Make sure to arrange help for after you come home. MDA’s care-coordination website myMuscleTeam is a good way to recruit and schedule volunteers.
by Margaret Wahl, Amy Labbe and Miriam Davidson on June 30, 2010 - 4:49pm

QUEST Vol. 17, No. 3

Women with neuromuscular disease who’ve gone through pregnancy — and the medical experts who care for them — offer this advice:

  • Choose a physician who is knowledgeable, prepared and enthusiastic about helping you have a child. If your doctor is unsympathetic or unsupportive, find another one.
  • Ensure communication among all members of your medical team — neurologist, obstetrician, anesthesiologist, primary care doctor, pediatrician, etc. All must be aware of your health status and prepared for the possibility of special complications.
  • As far in advance of the big day as possible, decide with your doctor where and how you will give birth. Make sure the hospital has a neonatal intensive care unit that can handle potential complications.
  • Arrange for help once you come home, to avoid overwork and injury. One way to easily mobilize a network of family and friends is myMuscleTeam, MDA’s care coordination website, which can help you (or a caregiver) recruit and schedule willing volunteers.
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