Women with neuromuscular disease who’ve gone through pregnancy — and the medical experts who care for them — offer this advice:
Choose a physician who is knowledgeable, prepared and enthusiastic about helping you have a child. If your doctor is unsympathetic or unsupportive, find another one.
Ensure communication among all members of your medical team — neurologist, obstetrician, anesthesiologist, primary care doctor, pediatrician, etc. All must be aware of your health status and prepared for the possibility of special complications.
As far in advance of the big day as possible, decide with your doctor where and how you will give birth. Make sure the hospital has a neonatal intensive care unit that can handle potential complications.
Arrange for help once you come home, to avoid overwork and injury. One way to easily mobilize a network of family and friends is myMuscleTeam, MDA’s care coordination website, which can help you (or a caregiver) recruit and schedule willing volunteers.