PP: A Day in the Life of a Periodic Paralysis Patient

by Victoria Cecil-Shover on July 1, 2009 - 3:17pm

QUEST Vol. 16, No. 3

The 911 call placed, you feel like you're dreaming,
You’re not, from afar you can hear sirens screaming;

The ambulance ride, your body’s not moving,
They wonder aloud, whoa, she's not improving;

Respiratory muscles won’t respond to a breath,
You know once again that you’re so close to death;

Whizzed in on a gurney, it’s all moving fast,
What? You’re parked in a hallway, suddenly bypassed;

How are you this evening? Then give you that look,
The oxygen, sensors and wires they unhook;

They make you feel guilty, as if you are faking,
You’re frightened, can’t breathe, and everything’s aching;

The ER visits, the doctors, the begging and pleading,
You would not desert me if I were here bleeding;

Weakness, paralysis and cognitive decline,
Inverted T-waves, arrhythmias are fine;

The patient is faking, playing possum I see,
With his hammer he can't get a jerk from my knee;

Agonizing pain, it strikes with a flash,
The doctor shrugs shoulders, departs in a dash;

Positive tests, plus symptoms and signs,
Potassium is low, but you will be fine.

~ Victoria Cecil-Shover
Solon, Iowa
hypokalemic periodic paralysis

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Victoria, what a wonderful

Victoria, what a wonderful poem and I can relate from a parents point of view. I have three daughters with Hypokalemic Periodic Paralysis. Their mother also has it. It is my prayer that a genetic treatment could one day be found to correct this. Again, a wonderful poem. Sincerely, my3daughters!

My daughter had her first

My daughter had her first experience with hypokalemic periodic paralysis the day after her 13th birthday, (2 days ago). When the ER nurse told her to "seriously try" to get up and stand on a scale, I wanted to hurt her!!!!! I resisted the urge and calmly explained that my daughter COULDN'T MOVE and it was a real disease...and so it begins.

The absolute worst when the

The absolute worst when the ER thinks your crazy or faking it!! Ive been there!! So scary and frustrating and you tell them exactly what it is and what you need to get better...they wont believe you until they see your file or look it up on the internet.... Great Poem.

Really, Really, Really

Really, Really, Really good...and totally true. It happened to me last night
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