MMD Research Update Streamed for Families Dec. 3

MDA hosted ‘viewing parties’ around the country to watch a live session from the International Myotonic Dystrophy Consortium

by Quest Staff on November 29, 2011 - 6:00am

As part of the upcoming International Myotonic Dystrophy Consortium (IDMC-8) in Clearwater, Fla., a session will be held Saturday, Dec. 3, 2011, to provide a research update for individuals and families affected by myotonic muscular dystrophy (MMD).

In order to make this update available to those unable to attend the consortium, MDA is offering free live streaming video of the update session and hosting viewing parties around the country. The research update session will be posted on MDA’s YouTube channel soon.

What is IDMC-8?

IDMC-8 (the acronym stands for International Dystrophia Myotonica Consortia) will be held Nov. 30 to Dec. 3 at the Sheraton Sand Key Resort. The eighth biennial (every two years) meeting will be attended by MMD scientists, physicians and health care professionals from around the globe, and will provide a scientific forum for discussing the latest developments and trends in MMD research and medical care. MDA is co-sponsoring the meeting.

Although individuals and families affected by MMD may attend the interactive, patient-focused research update on Dec. 3, the main sessions of the IDMC-8 meeting (Thursday, Friday and Saturday morning) are reserved for researchers to exchange information and ideas.

To view the research update session

The research update session will be co-chaired by Valerie Cwik, neurologist and MDA’s executive vice president of research and medical director. It will be presented from 2 to 6 p.m. Eastern time, Saturday, Dec. 3 (11 a.m. to 3 p.m. Pacific time).

MDA offices nationwide are hosting family conferences and viewing parties in connection with the live streaming video event. Please contact your local MDA office to learn about such opportunities taking place near you.

To view the research update, go to

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